The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. MGFA serves patients, their families and caregivers.
Myasthenia gravis (pronounced My-as-theen-ee-a Grav-us) comes from the Greek and Latin words meaning "grave muscular weakness." The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. To learn more click here.
Press Release from Alexion with further data from the REGAIN study presented July 7, 2016 at the meeting of the International Congress of Neuromuscular Disease. You can read the press release here.
Dr. Jeffrey T. Guptill (MD, MA, MHS), assistant professor of neurology at Duke University Medical Center, delivered an update on Myasthenia Gravis research and clinical findings, at the 2016 National Conference, held May 1-3, in Raleigh, North Carolina. Dr. Guptill discussed the updates on clinical trials for Methotrexate, CFZ533, Rituxmiab and Eculizimab, and also updates from the 2015 Scientific Session in Hawaii. Please click here for presentation.
"You are not alone. I have Myasthenia Gravis. Myasthenia Gravis does not have me." - A tremendous PSA produced by the MG Georgia Support Group, which can be viewed here.
The MG Walk office compiled a video slideshow from the 2015 Myasthenia Gravis Walks across the nation. The MG Walk Campaign generates awareness, renews hope, and creates a community of support while raising important funds for the Myasthenia Gravis Foundation of America. The MG Walk allows people with MG to talk about their diagnosis, many for the first time, while experiencing an overwhelming amount of support from their loved ones. Please consider joining us as we walk to raise vital funds to support the tens of thousands of Americans who live with MG every day. Visit www.mgwalk.org
"Snowflakes are one of nature's most fragile things, but just look at what they can do when they stick together." - Vesta M. Kelly
To learn more to to http://www.mgwalk.org/snowflake
RAISE (Recognize, Assist, Include, Support, and Engage) Family Caregivers Act (Senate Bill 1719; House Bill 3099) has passed the Senate but still needs to pass the House. This bipartisan legislation is led by Senators Collins of Maine with original cosponsors Sens. Baldwin (WI), Ayotte (NH), Bennet (CO) and Mikulski (MD) and calls for the Secretary of the U.S. Department of Health and Human Services to develop, maintain and update an integrated strategy to recognize and support family caregivers. MGFA joins with 50 other organizations to support the RAISE Family Caregivers Act. We urge you to take a few minutes to contact your Congressman/woman and urge him/her to support this legislation. It’s the first step in better recognition and help for family caregivers.
The Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT) is currently looking for people with myasthenia gravis (MG) to be part of a research study. Read more here
Rituximab Study FAQs
Additional Rituximab Study Information
Read more about Paula's struggle with insurance companies and how she dealt with them here.
If you are the parent of a child with MG, or you know one, MGFA is pleased to announce its new Parents’ Program and click on “More” at the bottom of the page to view Page 2 with more resources. Visit these new web pages for useful and informative resources and to access a webinar from Dr. Nancy Kuntz, a leading expert on MG in children, Northwestern Feinberg School of Medicine and Medical Director, Mazza Foundation Neuromuscular Disorders Program and MDA Clinic at Ann & Robert H. Lurie Children's Hospital of Chicago.
Are you a Parent of an MG Child? If so, you may be interested in MG Parents on Facebook. This is a Facebook page where parents can share their concerns, their triumphs, information and ideas. Take a look by searching MG Parents, or click here.
The MGFA is thrilled to announce a new awareness and fundraising initiative…Team ENDurance MG! This exciting program will empower all participants to raise funds for the MGFA and spread awareness about myasthenia gravis while training & participating in a “bucket list” activity such as a half or full marathon, triathlon or even an obstacle course race in mud! Learn more here!
The MGFA reached out to Dr. Jon Lindstrom, whose work, along with co-investigators, has focused on the possibility of a vaccine for MG as reported recently in the Journal of Immunology. Read more here.
We are now able to accept vehicle donations. For more information, click here.
Transformative Research Awards for Myasthenia Gravis and Related Neuromuscular Junction Disorders
Alexion Pharmaceuticals is conducting a clinical trial to determine if eculizumab is effective for the treatment of patients with refractory generalized Myasthenia Gravis (gMG). The enrollment for this study is complete. For information on MG and update on the study click here.
The American Society of Health System Pharmacists reported a shortage of Imuran. For more details, please click here.
There is no known cure for MG, but there are effective treatments that allow many-but not all-people with MG to lead full lives. Although the treatments will not cure MG, patients may have significant improvement in their muscle strength.