The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis. MGFA serves patients, their families and caregivers through a network of chapters, support groups and programs. Each chapter shares the vision of a world without MG.
Myasthenia gravis (pronounced My-as-theen-ee-a Grav-us) comes from the Greek and Latin words meaning "grave muscular weakness." The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. To learn more click here.
Have you enjoyed a book that has helped you cope with MG, become a better caregiver, improve your life, or enhance your mood? If the answer is yes, share your good fortune! Tell us the title of the book and the author’s name. In a few sentences tell why the book was so valuable to you and how you think other readers might benefit from reading it too. Selected recommendations will be included in the next Foundation Focus newsletter and all will be included on the MGFA website. Please keep your “book report” to 200 words or less. Content may be edited. To participate, please send your reading recommendations to email@example.com by March 9, 2015. Please provide your name, plus your phone number and an email in case MGFA needs to contact you.
If the answer is yes, MGFA like to hear from you. Do you have an uplifting story of love, courage or hope to share about your child and how you and your family have coped with MG? Your story can be about your daily challenges and triumphs. It can be about how you manage and what makes it all worthwhile. If you have such a story you would like to share, MGFA would like to hear from you. Selected stories will be included in the next Foundation Focus newsletter and all stories will be included on the MGFA website. Please keep your story to 250 words or less. Stories may be edited. To participate, please send your story to firstname.lastname@example.org by March 9, 2015. High resolution JPEG or Gif photos are welcome and may or may not be used. Please provide your name and your child’s name, plus your phone number and an email in case MGFA needs to contact you.
If you are interested in learning more about healthy cooking and ways to enjoy healthy MG friendly meals...be sure to attend the National Conference in April in San Diego where we will be joined by Master Chef Whitney Miller! For more information click here.
We are now able to accept vehicle donations. For more information, click here.
Transformative Research Awards for Myasthenia Gravis and Related Neuromuscular Junction Disorders
Alexion Pharmaceuticals is conducting a clinical trial to determine if eculizumab is effective for the treatment of patients with refractory generalized Myasthenia Gravis (gMG). Learn more here.
The MG Walk, has named "MG Walk Heroes" across each of the cities in which the Walks are taking place across the nation. Click here to read these heroes' stories.
The Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT) is currently looking for people with myasthenia gravis (MG) to be part of a research study. Read more here
Rituximab Study FAQs
Additional Rituximab Study Information
The American Society of Health System Pharmacists reported a shortage of Imuran. For more details, please click here.
2015 National Conference
Save - the - date The 2015 National Conference will be held April 29 - May 1 at the Wyndham San Diego Bayside in San Diego, CA. To make your hotel reservations click here.
To register for the National Conference click here.
To view the 2014 National Conference Video Presentations click here.
There is no known cure for MG, but there are effective treatments that allow many-but not all-people with MG to lead full lives. Although the treatments will not cure MG, patients may have significant improvement in their muscle strength.