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| | The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency dedicated solely to the fight against myasthenia gravis. MGFA has over 20 Chapters around the United States serving patients and their families and caregivers through support groups and programs. Each chapter is independently operated, but each shares the vision of a world without MG. |
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MGFA's Exciting New Podcast Series
MGFA has partnered with AANEM to produce a series of podcasts related to myasthenia gravis. Click here to listen to the first one on the safety of the influenza vaccine for patients with myasthenia gravis. Watch here for future podcasts. As always, consult with your physician directly before making any medical decisions.
The Autoimmune Diseases Summit, The Global State of Autoimmunity Today, will be held on March 3, 2010 in Washington, DC. A web cast of the entire days program will be available for patients, researchers, medical professionals and friends in the media to view the event. The summit is being presented by the American Autoimmune Related Disease Association (AARDA) and the National Coalition of Autoimmune Patient Groups (NCAPG), of which the Myasthenia Gravis Foundation of America, Inc. is a member. The summit program includes panel discussions on updated epidemiology, increasing levels of autoimmune diseases, advocacy and policy, media, and research. To sign-up for the web cast, go to the front page of the AARDA website www.aarda.org |
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A Letter from Julie Buckholt
on her life with MG.
Read her complete story here. |
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Click the link below to read a summary of the 2009 Scientific Session that took place on October 7 in San Diego, CA.
Scientific Session Summary
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NINDS Blue Sky Initiative
Click here to see MGFA's response to questions posed by National Institutes of Neurological Disorders and Stroke (NINDS) as part of its long term strategic planning effort as it relates to myasthenia gravis and disorders of neuromuscular transmission. |
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2010 Myasthenia Gravis Educational Session for nurses and other Health Professionals
May 4, 2010, St Louis, MO
Visit here for more information
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Myasthenia Gravis T-shirts are available!
Help us Unite for a Cure! With a donation of just $25 to MGFA, you can receive the MG t-shirt featured on the CBS Early Show (see above). Call 1-800-541-5454 to donate today!
MGFA recently seen on the national morning show, "The Early Show" on CBS. Seen here, Early Show host, Dave Price with MGFA, including members from the Garden State and Metro New York chapters. |
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| | Generic Version of CellCept
The FDA has approved the generic version of the Roche drug CellCept. The Medical/Scientific Advisory Board (M/SAB) believes the medication is equivalent to CellCept. However, our MSAB is stating that every patient should contact their neurologist regarding the switch prior to any change. No one should make the switch without a physician consultation.
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| | Swine Flu Concern Update
Patients concerned about infection with Swine Flu should contact their primary care doctor for advice regarding potential treatment. There are no reports of oseltamivir (Tamiflu) and zanamivir (Relenza) worsening myasthenia gravis, but that does not necessarily guarantee absolute safety. Presently, there is limited information regarding potential drug interactions with these medications.
Click here to read more.
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 | MGFA News |
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