MGFA

The Myasthenia Gravis Foundation of America (MGFA) is the only national volunteer health agency dedicated solely to the fight against myasthenia gravis. MGFA has over 20 Chapters around the United States serving patients and their families and caregivers through support groups and programs. Each chapter is independently operated, but each shares the vision of a world without MG.

Click here to view the 2010 National Conference presentations.

June is Myasthenia Gravis Awareness Month!

CBS Early Show

In celebration of June Awareness Month, MGFA was recently seen on the national morning show, "The Early Show" on CBS. Members from the Garden State and Metro New York chapters helped raise awareness for MG with T-shirts and a large banner.

Click here to view a video and article of Sherri Jutz's experience of living with MG. Video and article are courtesy of the UNC Medical Center News Office.

The American Autoimmune Related Disease Association (AARDA) will be holding free public forums on autoimmune disease open to patients, families, medical professionals and the general public. For more information, click here.

MGFA's Exciting New Podcast Series

Dr. Ted Burns from the University of Virginia and a member of the M/SAB is producing a series of patient oriented podcasts for MGFA with information on the diagnosis, treatment, and management of MG. Listen to the first three here.

MGFA has partnered with AANEM to produce a series of podcasts related to myasthenia gravis. Click here to listen to the first one on the safety of the influenza vaccine for patients with myasthenia gravis. Watch here for future podcasts. As always, consult with your physician directly before making any medical decisions.

A Letter from Julie Buckholt
on her life with MG.
Read her complete story here.

Click the link below to read a summary of the 2009 Scientific Session that took place on October 7 in San Diego, CA.

Scientific Session Summary

NINDS Blue Sky Initiative

Click here to see MGFA's response to questions posed by National Institutes of Neurological Disorders and Stroke (NINDS) as part of its long term strategic planning effort as it relates to myasthenia gravis and disorders of neuromuscular transmission.

Myasthenia Gravis T-shirts are available!

Help us Unite for a Cure! With a donation of just $25 to MGFA, you can receive the MG t-shirt featured on the CBS Early Show (see above). Call 1-800-541-5454 to donate today!

Help us continue to unite for a cure!
Download this year's awareness poster to share with your community.

MGFA 2010 Poster 11x14
MGFA 2010 Poster 8.5x11

Generic Version of CellCept

The FDA has approved the generic version of the Roche drug CellCept. The Medical/Scientific Advisory Board (M/SAB) believes the medication is equivalent to CellCept. However, our MSAB is stating that every patient should contact their neurologist regarding the switch prior to any change. No one should make the switch without a physician consultation.

Swine Flu Concern Update

Patients concerned about infection with Swine Flu should contact their primary care doctor for advice regarding potential treatment. There are no reports of oseltamivir (Tamiflu) and zanamivir (Relenza) worsening myasthenia gravis, but that does not necessarily guarantee absolute safety. Presently, there is limited information regarding potential drug interactions with these medications.

Click here to read more.

Read her complete story here:

A Letter from Annette Kennedy-Bowman
On Life with MG