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2012 National Conference

The National Conference combines the Foundation's annual business meeting with the opportunity for patients and their families to learn more about the disease and its treatment, current research, and tips to learn 'how to live' with MG from experienced medical professionals and fellow patients.

The 2012 National Conference was held April 25-27 in Las Vegas, Nevada at the Bally's Hotel.

To view videos of the 2012 National Conference presentations click here.

To order copies of the conference videos click here.

MGFA National Conference Agenda

April 25-27
Bally's las Vegas
Las Vegas, Nevada
Wednesday April 25th

Wednesday April 25^th

5:30 PM – 7:30 PM Welcome Reception

Thursday April 26^th

7:30 AM Relaxation/Mind Body Exercises

8:00 AM – 9:00 AM Continental Breakfast

9:00 AM – 10:00 AM Meeting of the General Assembly/State of the Foundation

(voting and non-voting members)

Mr. Samuel Schulhof, Chair
Myasthenia Gravis Foundation of America, Inc.

10:00 AM – 10:15 AM Morning Break

10:15 AM – Noon Continued General Assembly

(voting members only)

Runs concurrent with MG101 and Healthy Aging roundtable

10:00 AM – 11:00 AM MG101-The Basics

Neil C. Porter, MD

Assistant Professor, Department of Neurology

University of Maryland

11:00 AM- 12:00 PM Healthy Aging – Interactive Discussion

                                              Richard Macko, MD
                                              Professor of Neurology
                                              University of Maryland School of Medicine

Noon – 1:00 PM Lunch

1:00 PM – 2:00 PM               Beauty Does Lie: The Untold Stories of Autoimmune Diseases
                                              Courtney G. Smith
                                              Producer, Control Your Auto Productions, Inc.

2:00 PM – 3:00 PM The Mind/Body Response
Suzanne Ruff, PhD

Cleveland VA Medical Center

3:00 PM – 3:15 PM Afternoon Break

3:15 PM -- 3:30 PM Patient Registry Update

Gary Cutter, PhD

University of Alabama

3:30 PM – 4:30 PM                Drug Development/Clinical Trials of MG Drugs
                                              Jürgen Venitz, MD, PhD
                                              Associate Professor, Department of Pharmaceutics,School of Pharmacy,
                                              Medical College of Virginia Campus of Virginia Commonwealth University

4:30 PM – 5:15 PM                Healthy Aging
                                              Richard Macko, MD
                                              Professor of Neurology
                                              University of Maryland School of Medicine

6:30 PM Awards Dinner

Friday April 27th

7:30 AM – 8:00 AM Exercise

8:00 AM – 9:00 AM Continental Breakfast with Round Table Discussions

9:00 AM – 10:00 AM MG in Young People

Nancy Kuntz, MD

                                             Medical Director of the Mazza Foundation
                                            Neuromuscular Disorders Program
                                             Children’s Memorial Hospital in Chicago.

10:00 AM – 10:15 AM Nurses – Update on MG Guidelines

Wilma Koopman, RN(EC), MScN, ACNP

Nurse Practitoner, London Health Sciences Centre

10:15 AM – 10:30 AM Morning Break

10:30 AM – 11:00 AM Healthy Eating and MG

Kelly Ort, MS, RD, LDN

                                              Research Dietitian
                                              Geriatric Research Education and Clinical Center (GRECC)
                                              Department of Veterans Affairs Medical Center Baltimore

Whitney Miller

Winner – Fox Television Master Chef

11:00 AM – Noon                   Walking Away from MG
                                              Charlene Hafer-Macko, MD
                                              Department of Neurology

University of Maryland School of Medicine

Noon – 1:30 PM Lunch

1:30 PM – 2:00 PM Report from Consensus Conference

Jennifer Faucett, Esq.

Associate Attorney
Waller Lansden Dortch & Davis

2:00 PM – 2:30 PM MG Research Update
Linda Kusner, PhD

                                             Assistant Professor
                                             George Washington University

2:30 PM – 3:00 PM Myasthenia Gravis Management Update
Rossitza I. Chichkova, M.D., M.S.

Associate Professor,
Department of Neurology and Internal Medicine

University of South Florida, Tampa, FL

3:00 PM – 4:00 PM Ask the Professionals Panel

4:00 PM – 4:15 PM                Closing Remarks
                                              Samuel Schulhof, Chair
                                              Myasthenia Gravis Foundation of America, Inc.

6:00PM Las Vegas MG Walk

2012 National Conference