Siobhain Carolan Mar 15, 2024 Living with MG Stories 2024 Rare Disease Week on Capitol Hill Siobhain Carolan, who lives with congenital myasthenic syndrome, discusses her experiences advocating for those with rare diseases at 2024 Rare Disease Week on the Hill. Read More
Kate Stober Mar 07, 2024 MG Articles Making the Most of Your Doctor Appointments Dr. Heather Finlay-Morreale, a medical doctor who lives with MG, shares tips for preparing for your doctor’s appointment and making the most of the time you have with your provider. Read More
Kate Stober Feb 13, 2024 Community Fundraising Remembering Tom Larsen, the Incomparable “Rocket Man” In February the MGFA and the MG Community lost a dedicated volunteer and champion advocate of patients and caregivers. Friends and staff remember his legacy. Read More
Kate Stober Feb 12, 2024 MG Articles Does Madame Web Have Myasthenia Gravis? Get to know the main character of the newest Spiderman film Read More
Kate Stober Dec 14, 2023 MGFA Programs What’s Your Antibody? Knowing your antibody status helps you manage your myasthenia gravis. Read More
Kate Stober Nov 21, 2023 Living with MG Stories You’ve Got a Friend in Me How the MG Friends program makes a difference – for patients and volunteers. Read More
Kate Stober Nov 09, 2023 Living with MG Stories How to Keep Physical Fitness in Your Life, Despite the Challenges MG Brings When bodybuilder Barry Stalker found out he had myasthenia gravis, his life did a 180. “I went from being able to squat 400 pounds to my wife having to help me off the sofa.” Read More
Kate Stober Oct 19, 2023 MGFA Programs Learn about Medical Financial Assistance from the PAN Foundation Amy Niles of the PAN Foundation shares how the organization can help MG patients pay for out-of-pocket prescription medicine costs. Read More
Kate Stober Oct 17, 2023 Community Fundraising Running the NYC Marathon for a World without Myasthenia Gravis MGFA sat down with MG patient Julie and her boyfriend, Zack, who is running the marathon for MG awareness, to talk about why supporting the MGFA matters to them both. Read More
Kate Stober Sep 29, 2023 Living with MG Stories Requesting Accommodations for Myasthenia Gravis at Work Tips for ensuring you are seen, heard, and accommodated. Read More
Kate Stober Sep 21, 2023 Events For the Golden-Gershwins, Annual Golf Tournament is a Family Affair For 31 years, the Helen and Leonard A. Golden Memorial Golf Classic has brought together family, friends, neighbors, and colleagues to raise funds for myasthenia gravis research. Read More