Kate Stober Mar 02, 2023 Our MG Voice Advocacy Rare Disease Week: Highlighting Seronegative MG, a “Rare-of-the-Rare” Disease seronegative The struggle seronegative myasthenia gravis patients face for diagnosis and treatment. Read More
Kate Stober Mar 02, 2023 Our MG Voice Advocacy Rare Disease Week: Highlighting Seronegative MG, a “Rare-of-the-Rare” Disease seronegative The struggle seronegative myasthenia gravis patients face for diagnosis and treatment. Read More
Laura Chandler Feb 28, 2023 Our MG Voice Advocacy How to Be an Advocate for Yourself and Others with Myasthenia Gravis Rare Disease Day happens once a year, but you can bring awareness to myasthenia gravis any day of the week! Read More
Meridith O’Connor Feb 25, 2023 Our MG Voice Advocacy When Every Day is Rare Disease Day Illuminating the support rare disease patients need 365 days of the year. Read More
Laura Chandler Feb 23, 2023 Our MG Voice Advocacy Rare Disease Week – Advocacy at Home and on the Hill Rare Disease Week starts on February 28. Learn how you can advocate for people with MG. Read More
Mike Antonellis Apr 25, 2022 Our MG Voice Advocacy Janet Myder Was the Epitome of Dedication to MG Advocacy Janet Myder was a Dedicated MG Volunteer. Read More
Kate Stober Apr 11, 2022 Our MG Voice Advocacy When Rare Disease Advocacy Is Personal For Brenda Colmenares, an MG diagnosis set her on a path of rare disease advocacy and awareness. Read More
Genna Mvalo Aug 24, 2021 Our MG Voice Advocacy MG Patient Advocates Make Their Voices Heard During Rare Disease Week 2021 MG Advocates Describe Their Experiences During Rare Disease Week Read More
Genna Mvalo Mar 22, 2021 Our MG Voice Advocacy MGFA Partners with Rare Across America to Advocate for MG Patients Volunteers Ensure Political Leaders Understand the Challenges of Rare Diseases like Myasthenia. Read More
Michelle Baumgartner Mar 08, 2021 Our MG Voice Advocacy An Inspirational Myasthenia Hero for So Many in the MG Community Lenora “Lynn” Waltz was an amazing advocate for the myasthenia community, with an inspiring story that touched so many people. Read More
Kate Stober Feb 22, 2021 Our MG Voice Advocacy Spreading MG Awareness, One Step at a Time By Advocating Drea Carbone began her MG advocacy almost as soon as she was diagnosed and she hasn’t slowed down since. Read More