Thank you to all the caregivers out there in the Myasthenia community. You are a source of strength, safety, and support for all those living with MG. The relationship between an MG patient and a caregiver is a sacred, powerful bond that is strong, but can also be as delicate as two intertwined snowflakes. Show your support and gratitude to all the caregivers out there for their commitment to those with MG.
Please submit a favorite photo of your caregiver, or of you and your caregiver, to view on the photo gallery below. Use the form to the right side of this page to submit.
Name: Michael Antonellis Caregiver's Name: Caregivers Number One Country: United States
Caregivers are so amazing and critical for our friends with MG. Caregivers are #MGStrong
Name: Gary Blackburn Caregiver's Name: Peggy Blackburn Country: United States
For over 40 years my wife has stood beside me. I thank her for her unwavering support and patience.
Name: Bennie Tucker Caregiver's Name: Lisa Tucker Country: United States
There are no words to thank my wife for being my strength when I am weak, building me up when i am down, showing me the light when i see dark, never giving up when I see no way possible, she never gives up on me and won't let me give up on myself, saying anything is possible we just have to think positive and positive things will happen. We have been married for 50 years and I can not imagine my life without her. She is my wife, best friend, caregiver, my everything.
Name: Richard Alimena Caregiver's Name: Shelley Alimena Country: United States
My caregiver is my wife Shelley. From the beginning she has been my source of strength both physically, emotionally and mentally. She has been my advocate, educator and when necessary my accountability partner. Because there are to many things she does to list I will not go into detail. Over the last year she had also taken on the responsibility of caring for her father who recently passed.
If you were to ask she would tell you she is not special and that many more deserve recognition and I agree. However she is such a blessing to myself and so many others Whose lives she’s touched.
Just like snowflakes every caregiver is special and beautiful in their own way.
Name: Janice Buczkowski Caregiver's Name: Clint Buczkowski Country: United States
Clint attends my MG meetings, doctors appointments and educational seminars. He is filled with knowledge about MG and is my partner in this journey. He is the first to notice if something seems off with my balance, eyes, and health. He looks after me with love, gentleness, and dedication. MG has brought us closer together!
Name: Sarah Caregiver's Name: Ty Country: United States
My caregiver and husband is strong, selfless and steadfast. He has stood by my side since my first symptom. Thank you for your strength!
Name: Gary Blum Caregiver's Name: Jill Blum Country: United States
During trying times, Jill has been there for me as well as a caregiver for her elderly parents. Not a selfish bone in her body. This was not what she signed up for as the saying goes. God bless her and all caregivers. You all are the heroes.
Name: Anita Tarlton Caregiver's Name: David Waters Country: United States
My husband David is AMAZING! He understands when I have "down" days and never complains about having to take up the slack for me. He is my "personal chef" and prepares delicious meals for us. He makes me laugh every day, and I am grateful for his love and care.
Name: Melissa Wohlust Caregiver's Name: Bryan and Madison Wohlust Country: United States
My husband, Bryan and daughter, Madison are by my side constantly on my MG journey. Thankfully, we’ve ‘graduated’ from Bryan having to dress me and Madison making emergency calls for me, but they are both still instrumental in helping with my physical, emotional and spiritual well being every single day. Plus they provide hours of entertainment! They are the superstars on my MG team!
Name: APRIL Caregiver's Name: BrANDAN Country: United States
My son has been by my side, moving in w/me to help on a daily basis. I cannot have a lived w/out all his love,, support, both mentally, emotionally, physically.
Name: Aliza Burton Caregiver's Name: David Waters Country: United States
The love and caring that David has shown for my friend Anita is amazing and never ending.
Name: Barb McDonald Caregiver's Name: Karen Grayberg and sisters Country: United States
I live with Karen (a Nurse Practitioner). She is so kind and compassionate towards me and is always by my side when I need her. Allison and Melissa call daily and visit frequently. I am so blessed. Thank you my precious daughters.
Name: Andrea Ujj Caregiver's Name: Martin Ujj Country: Hungary
My youngest caregiver is my son, Martin. He is a teenager full of with energy. He does not know so much about myasthenia gravis .He knows just the life was changed suddenly. His mom is at home because she is ill, could not work at workplace and mom is always waiting for him arrived from the school . Mom wishes him a happy childhood without fear and stress what could happen in the future. Just be in the present..Live a mindfull life together, with his father as well. Martin can help mom when she is so tired. He gives his hand and pulls, pushes mom to can go ahead on the road, can walk and make small trips. He can hoover instead of mom as well. Martin could bring happiness in the everyday life.
Mom is also grateful for her mom who is giving her more care this time. Mom's dad takes care of mom from the heaven .
Living with MG is a big challenge for the whole family..
I wish everybody at least one nice caregiver to can fight against MG.
Name: Rhonda Good Caregiver's Name: Bobby Good Country: United States
My caregiver is my husband, Bobby. I have only known that I had MG for a little less than 2 years but during this short time I have been hospitalized on the ventilator 16 times. I want to thank him for always being there for me and waiting for me to wake up and come back home to him. He takes care of me as well as our autistic 16 year old son. He is a blessing and my rock. Thanks Honey for all that you do. I love you forever and always!!!
Name: Kathi Timothy Caregiver's Name: Joleen Rockhill Country: United States
My daughter, Joleen Rockhill, has literally saved my life twice. She has given up so much to care for me. I don’t know how I can ever thank her. I love her!!
Name: Tammy Menter Caregiver's Name: Scott Menter Country: United States
Let me introduce you to Scott Menter. He is a son, brother, uncle, brother-in-law, father, and grandfather. He is also my husband, best friend, and an awesome caregiver. He is humble, kind, considerate, thoughtful, patient, compassionate and understands the medical aspects of Myasthenia Gravis and advocates for quality health care. He is a very special blessing that I love with all my heart. He married a healthy and strong woman and 5 years into married life his world changed. His role changed from husband - to husband and caregiver. He had married a woman with a disease that had no cure. Fifteen years later he has earned a MD degree. Not from a college curriculum or with an university seal, but through life’s experiences, in and out of multiple clinical settings. He can interpret a blood panel or vitals without a pause. He understands the multiple medical disciplines needed for the management of Myasthenia Gravis and as an added bonus he totally understands medical jargon. This man has picked me up of floors, showers, tubs, toilets and bathed me, dressed and fed me all before 8am. Scott has not only accepted the task of caregiver, but he has excelled.
Scott Menter is my husband, best friend, and a loving caregiver. I’m honored to share his picture for all the world to see this magnificent man.
Name: Paula McGinnis Caregiver's Name: Gary McGinnis Country: United States
Walking the MG Journey Together
I would have never imagined when I stood at the altar forty-seven years ago and said, “I do,” that Gary would someday actually walk in the shoes of Myasthenia Gravis with me. In fact, at that time in my life I had never even heard of Myasthenia Gravis.
Each this cowboy husband first watches the weather, and then he checks with me about my schedule prior to making his plans for the day. He loves to take his horse and ride the trails of Shawnee Forest every opportunity that he has, but he will even put that aside if I have an appointment on the calendar.
It has been through the grace of God, who is my strength and my perseverance, that I became and active voice of raising awareness of MG, even on vacation, with Gary at my side.
Yes, I have MG, but it is not the end of the world, because now as I journey through life with MG, I am thankful that my life is filled with a very strong support system of my family, friends, and most of all a very supportive cowboy husband.
I feel blessed every day that my husband is my best friend, and my MG caregiver hero, because there have been times I have to give in and require his assistance.
If anyone, in my life, truly understands MG and walks in the shoes with me it is my cowboy hero, who is my superhero, and God is our guide.
Name: Allison Hawkins Caregiver's Name: Jim Hawkins Country: United States
My husband has been there for me since day 1 of my MG journey. He has held my hand through it all and worked extra hard-working and supporting our family of 6 since I can no longer work. He's a great dad to our 4 kids and the best husband I could have ever asked for. When we took our vows "in sickness and in health" he truly has followed through with his promise to me.
Name: Allison Hawkins Caregiver's Name: Claudia Arnold Country: United States
My mom, where do I begin. She has always dropped whatever she was doing or plans on her calendar to help me when I need it the most. On treatment days, on bad MG days, taken on my "Mom" duties to my 4 kids while I've been in the hospital over the last 5 years. She truly is selfless and I am the mom I am today because of her.
Name: Zoltan Lelkes Caregiver's Name: Aranka Gabor Lelkesne Country: Hungary
My caregiver is my wife. Aranka is supporting me for 26 years. She helps to build the diet which is useful for me and my MG. Mainly as a result of the special diet I am in remission for a long time. She is always standing next to me during the weekdays to can preserve my good condition. She is a partner in everything. We could build a house and we have four nice children. I am grateful for my wife and proud of my family.
Name: Sara Rutledge Caregiver's Name: Bill Rutledge Country: United States
I was diagnosed at age 16. Bill and I were dating. He studied everything he coud regarding MG. We just celebrated 59 years of marriage.
Name: Christina Thompson Caregiver's Name: Jason Thompson Country: United States
Thank you for staying by my side. I would have given up by now if not for you.
Name: Marti Caregiver's Name: Ann Country: United States
Ann takes very good care of me. She has been by my side ever since my diagnosis in 2018. I can’t thank her for all she has done. You are truly the Best!!
Name: Denise Sweeney Caregiver's Name: Pete Sweeney Country: United States
My husband has been my strength through this unexpected life journey. He always helps without question, anticipates my needs, makes me laugh when I am crying, massages the pain, looks for the positive when I am hopeless AND cooks and handles the household responsibilities !! He is AMAZING and I’m so grateful ❤️
Name: Dina Caregiver's Name: Melt Country: South Africa
My husband has been my caregiver for the last 11 years. He has been my strength and always there when i need him. Never complain and always help me with so much love. I want to thank him everything and being there for me. I love you so much. Thank you without you this journey would have neen so much harder.
Name: Brittany Asay Caregiver's Name: Levi Asay Country: United States
Levi is my husband and absolutely supportive! He helps in so many ways, from little things like putting my hair in a pony tail on bad days, to carrying most of the weight backpacking on good days. In this picture he attend an MG walk when we were living separately for grad school!
Name: Judi Ameliorette Caregiver's Name: Lisa Moreau Country: United States
Lisa continues to be my lifeline of support. She lifts me up when I am down, she comforts me when I am feeling ill, she allows space for my frustrations, and she supports me through my fears. Lisa lights up my life!
Name: Robert Rumph Caregiver's Name: Johnny Rumph Country: United States
I would not be here without the love of my life! Not only does she work full time as an educator extraordinaire!, my wife was at my side during crisis and is my constant advocate and best friend!
Name: Anna Caregiver's Name: Mom (Robin), Dad (John), and Blaise Country: United States
My family has been my sole support, and care team since my diagnosis. They help me get through each and every day, they pick me up when I’m down, they are always there for me, and never ever fail to put a smile on my face, all while dealing with their own stress and illnesses. They have put on a brave face, and stayed positive during some of my hardest moments. I owe them the world, and I will never be able to thank them enough. Love you all so very much, I appreciate you more than you know. <3
Name: Jessica Caregiver's Name: Kelvin Country: United States
My husband has been my beacon of strength, source of patience, and bridge of hope. Without faltering, he has stood by my side and has held true to his devotion to our marriage. He has never once made me feel to be a nuisance or burden. He has continued believing that the real me was still in there, even when the sickness was all you could see. Thank you my love...thank you for loving me so well. Love you forever!
Name: Jen Januario Caregiver's Name: Brenden Groom Country: United States
“You are everything to me”
My partner Brenden says words like this to me almost every day. Often without being prompted. With love letters and notes around the house. Visible acts of love by taking on not just a role of boyfriend, but mostly full caretaker, without skipping a beat.
I was previously fiercely independent. Perfectly fine on my own. Doing and saying the things I want. In my own time. In my own way. Even in relationships. You can then imagine the emotional struggle it was for me to adapt to be someone who genuinely sometimes needs help- physically often, emotional sometimes, but help in all different forms now consistently.
I struggled with “needing someone” long before COVID. Not just depending on someone, but worse, having to worry if I am a constant burden or hinderance on their life. What if he never met me? Would he be living a happier less complicated or demanding life?
When I got sick, our lives changed. I could do much less as I attempted to work towards remission and recover from what my body went through in the hospital and sometimes, what it goes through day to day. Our social engagements lessened. Sometimes I got angry, frustrated, sadder. We went on less adventures. I could do less around the house.
COVID brought a whole other layer. He went from boyfriend, to caretaker, to having to live as if he is high risk, because I am high risk. The limitations on that are what you can imagine. Lockdown. Not low risk activities but no risk activities. He’s also now my professional grocery shopper. Almost anything I need to do outside our home relies on him.
And again, he hasn’t missed a beat. In fact, he refuses to take credit whenever I bring it up. His knee jerk response when I thank him is “shut up, I didn’t do anything”.
There are dark days of feeling guilt and of feeling like you’re a burden on most people- or if you actively positively contribute to people’s lives anymore when you feel like you can barely help yourself. But thanks to him, there are more good days. More laughs. More love. And we have somehow even become closer.
I can only hope that I bring half the amount of love and happiness to his life that he brings to mine. Keeping me on track physically, mentally, emotionally. And I’ve given him invitations to leave for a better life, even tried pushing him away.
But every time I do, or question if I’m not enough, I thankfully always know what to expect- “You are everything”.
I am very lucky.
Name: E. Anne Melvin Caregiver's Name: Wayne Melvin Country: United States
Wayne is always there to help me complete what I start. I guess you can say, he completes me, not to do it for me, but to help me be the best I can be. He uplifts me as well as assists me, He is the wind beneath my wings. We have been together 42 years. I thank God for him as my caregiver, my husband, the father of our child. Thank you Wayne for all you do
Name: Tracy Will Caregiver's Name: Blake Will Country: United States
My husband is always by my side through thick and thin. He holds me up! Quite literally!
Name: Jasmine Jones Caregiver's Name: Cathy Country: United States
What isn't there to say about this amazing woman? She was there for me when I was first diagnosed with MG. We lived on the 3rd floor, and she would make it her mission to help me in any way possible I'm genuinely grateful for all the dedication she put into her job. The support she gave was excellent. We will always be incredible friends.
Name: Barbara Crosby Caregiver's Name: Barbara “Poppins” Perrault Country: United States
Poppins came to care for my daughter, but saw I needed care as well. For this and her gift of friendship, I am forever blessed and grateful. Love you my friend.
Name: Cheri Heitman Higgason Caregiver's Name: David Higgason Country: United States
My husband, David, is my best friend. He is always there for me no matter what, from getting me to my appointments to helping me stand when my legs have quit working. He works so hard to provide all that we need and still shoulders much of the household work while caring for my needs. He is truly my hero, and I could not have a more loving caregiver. If I could give him anything, it would be more sleep!
Name: Micky Milford Caregiver's Name: Johanna Milford Country: United States
I couldn’t do this alone! No is always there...to keep me going strong!
Name: Brooke Storms Caregiver's Name: Chad Storms Country: United States
My husband is my rock and literally us my legs and voice when I cannot use mine. He supports me every day in every way every day and I cannot imagine this journey without him. Thank you!
Name: Clifford Fee Caregiver's Name: Jean Fee Country: United States
My wonderful Wife has been my rock throughout our marriage as well as since MG diagnosis in 2017. It has been a challenge for both of us. If not for her love and strength, I don't think I would be here today. Love ya Babe!
Name: Courtney Boehlke Caregiver's Name: Claire Boehlke Country: United States
My daughter hasn’t left my side since my diagnosis 13 years ago. Unwavering in her love and commitment to me and my well-being. I love her and thank her for never giving up on me.
Name: Joy Baird Caregiver's Name: D'Wayne Baird Country: United States
This precious man has been my support, my best friend, and my sounding board for almost 48 years. For the last 13 of those years, I have had MG, and he has been such a strength to me in all the ups and downs of this illness. He is selfless in his service to me, as well as others, who have this illness. His support of me as a support group leader is tremendous, doing whatever needs to be done. He offers encouragement to our group and always brightens my days with his quirky sense of humor and his commitment to me and our family.
Name: Adrienne McCrary Caregiver's Name: Penny Country: United States
Penny is an awesome and amazing nurse. She was the first nurse I had to give me my IG/IV infusion. She goes beyond her duties as a nurse because I talk to her and share how I be feeling. Thank you Penny for all you do for me. Adrienne L. McCrary
Name: Adrienne McCrary Caregiver's Name: Linda Smith Country: United States
Linda wears many hats in my life. She is very supportive of me. Anytime and anywhere she provides her support. I can call her 3:00 in the morning or late night, she always come to my aid. I thank God for planting her in my life to help me with my journey of MG.
Name: Roy Eades Caregiver's Name: Joyce Eades Country: United States
Joyce is my caregiver and wife of 55 years. Only have had MG since July of 2017 but she has taken care of me a lot longer....
Name: Amanda White Caregiver's Name: Veronica White Country: United States
My daughter Amanda is the most amazing young woman on this planet, we love her so much.
Name: Laurie Katz Caregiver's Name: Rick Katz Country: United States
My loving husband who is always by my side. Whatever I need he’s always there for me.
Name: Stephen Blank Caregiver's Name: Lindsay Blank Country: United States
My wife has been the best caregiver and wife to me. She has been through the thick and thin of this disease. I don't what I would do without her.
Name: Deborah Poropat Caregiver's Name: Greg Poropat Country: United States
To my knight in shining armor, my husband of 46 years, and my best friend, who always puts my needs and the needs of our family first: THANK YOU!
Name: Daughter Sandra Caregiver's Name: Romalynn Country: United States
My sweet Mom took care of my father who knowingly had MG for 27yrs. He had the best life, truly a strong individual with her unconditional love, support and many sleepless nights by his side. I know he is Eternally grateful to her. 💙#MGSTRONG
Name: Yolanda Chase Caregiver's Name: Trayvon Rodgers Country: United States
I want to 🗣to my son for the love he gave me during my early years of my diagnosis of MG. Looking after his brother and me taking on being the man of the house and preparing meals for us. So I thank you from the bottom of my heart.
Name: Laura Caregiver's Name: Luis Country: United States
My caregiver it’s my husband, he is my support, my rock and father of our two boys! He has been by my side every step of the way taking care of me every single day, he has read everything he can to learn, even the clinical papers! I know he puts up a brave face. For me but he worries constantly. I’m so grateful to have him, thank you for loving me.
Name: Aimee Sears Caregiver's Name: Scott Sears Country: United States
My husband is nothing short of amazing as he supports and helps me in every way possible with my medical and emotional needs. He carries most of the load of running our household and is also an awesome Dad to our two children. We are truly blessed.
Name: Meena Outlaw Caregiver's Name: David Outlaw Country: United States
He’s the most selfless person and I’m so lucky to have him as my husband. He has made sure I’m on top of my treatment, medication and will help with task that sometimes I can’t do because of the MG symptoms. It’s because of him I can continue to focus on my self care.
Name: Michael Norris Caregiver's Name: Laura Norris Country: United States
My wife, my best friend, my caregiver, my life! So grateful for her! Love her so much!
Name: Mary Lynne Knighten Caregiver's Name: John D. Knighten Country: United States
My loving husband of over 20 years is my help, my support, my strength. I’ve had MG for five years, and two months today—exactly. John has always believed his primary role was to support me, and in doing so, we both are doing God’s work. So whether I worked 14-hr days as a nurse executive pre-MG, volunteered at the church health ministry, or struggled to work part time with multiple naps per day with MG, he made dinner, washed the clothes, took care of me and the cat, and did so with a smile on his face and love in his heart. I’m eternally grateful for this man whose love language is service. ❤️ I love you Johnnie and can’t do what I do or be who I am without the best of you.
Name: David Li Caregiver's Name: Sean Hernandez Country: United States
Sean supports me even when life is hard. Thanks for making life fun. Here's a picture of us enjoying the serenity of Storrier Sterns Japanese Garden in Pasadena. <3
Name: Mira Gregory Caregiver's Name: Dhira and Tira Country: United States
So fortunate to have two caregivers! The beautiful souls who have had the pleasure of meeting my beautiful care-giving daughters, Tira and Dhira, twins, have perceived first-hand their remarkable spirits, their dedication and commitment to their mom and with the entire MG community. May they continue to serve and spread their light and love to all.
Name: Lorraine Ludwico Stevens Caregiver's Name: Dr C Becht Stevens Country: United States
My husband married me 30 years ago knowing I was ill with Lupus and 2 daughters from day one he loved and cared for me ( us ) without effort . I then went into overlapping autoimmune diseases Myasthenia Gravis ( it took 9 years to diagnose) and others our journey through sickness and health has continued for 30 years . February will be 20 years with MG . He is my strength, my hope , my night in shinning armor. A humble man , a gentle man a nurturing man . But most of all he is my soulmate ! Without him and our Lord I wouldn’t be here .
Thank you Becht ! I love you with my being ❤️😘
Name: Victor Yipp Caregiver's Name: Iris Yipp Country: United States
It is so important to have a caregiver when you have a rare disease such as MG. I am so fortunate to have my wife Iris with me on my MG journey, learning with me and joining me as we both confront this "snowflake" disease. I treasure her love and support.
Name: Julie Buckholt Caregiver's Name: Paul Buckholt Country: United States
Paul has been with me every step of the way. He has been my source of strength. Paul fights the insurance company for my medical needs when necessary. He has become my hero!
Name: Jessica Caregiver's Name: Jeffrey Country: United States
Jeffrey and I didn’t think our wedding vows “in sickness and in health” would apply so soon after getting married! After 5 months of marriage I started having my first symptoms and Jeffrey has been by my side providing both emotional and physical support. He never treats me any differently, makes our day to day lives feel normal when I’m symptomatic, and always tries to make treatment days fun and exciting. I couldn’t do this without him and his unwavering support. We coming up on our second anniversary in December!
Name: Cesar Morales Caregiver's Name: Elizabeth Morales Country: United States
My wife has been my hero, doctor, nurse, pharmacist, protector and even scientist. On my bad days she reminds me that life is hard but being with her is worth every minute of my life. Her smile and positive attitude keeps me motivated to do the same. I thank god every day for letting me be in her life and I cherish every moment.
Name: Wilma Hill Caregiver's Name: Jennifer Moore (RN) Country: United States
Jen is a loving, companionate, caring young woman who has jumped in when needed, given up so much of her time to advocate and care for me (and others as well). Her dedication to her family, friends and patients is inspiring. Without her continuing help, my journey with MG would be quite different. She has often been in contact with doctors and nurses on my behalf. She has flown from her home to be with me in the hospital, and when I was not able, to move me from my home to independent living, then again to a group home where I am now. I am blessed to call her my daughter. The picture is of Jen, Mother, and me.
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