June is MG Awareness Month around the world! Every year, the MG Community TAKES ACTION to CREATE AWARENESS, making sure people understand the challenges and opportunities faced by those diagnosed with myasthenia gravis and their caregivers.
Check out these great ideas below to TURN AWARENESS INTO ACTION in 2023 and get to work so everyone knows about myasthenia gravis. MGFA is offering a number of creative ways to show that WE ARE MUCH MORE THAN OUR MG. Start planning your MG Action Month activities TODAY!!
Tell us how you are turning awareness into action
MGFA MG Awareness Month Toolkit 2023
Download the latest MGFA MG Awareness Month Toolkit for fun and creative ideas to drive awareness no matter where you live in the world. Contains new ideas and revisions, including forms that you can download to help get started.
Be sure to check out our MG Fact Sheet, which you can download and share with friends, colleagues, neighbors, and more.
Dare to Care
In 2023, we launched our new signature fundraising campaign, DARE to CARE! Dare your friends and family to care about MG, and raise both awareness and funds to support the MGFA's mission. Learn more and sign up on the DARE to CARE webpage.
Drive Awareness Activity Today!
MGFA Wall of MG Awareness 2023: When you are engaged in awareness activity, take a digital photo and send to the MGFA so it can be posted on our new 2023 Wall of MG Awareness. We will make a link available soon so you can submit your photo with a caption.
PROCLAMATIONS: Meet with or call legislative leaders to secure a PROCLAMATION officially declaring June as MG Awareness Month. Use our handy PROCLAMATION SAMPLE DOCUMENT to help you write a request. Please work on this NOW to have it in time for June. We will also include a link to our new Proclamations Wall online in the coming days. Display a photo of the proclamation from your state or town.
MEDIA COVERAGE OF MYASTHENIA: Reach out to local broadcast and print media in your region, and “pitch” reporters to cover the challenges that MG patients face. Tell them your story, pitch them on key legislation, talk about your life with MG. Even write an article that you can submit to their publication. More training coming, but you can use these MEDIA PITCH SAMPLES to help you.
WRITE AN OP-ED ARTICLE IN LOCAL PAPER: If you really like writing, go ahead and compose a written op-ed piece for your local paper or news source. Simply contact the opinions editor, submit your written piece, and watch for the coverage. Check out our OP-ED SAMPLE document to learn more and see an example, and check out the OP-ED PROJECT for further tips as well as news contacts across America.
LAWN SIGN: You can download this poster-sized sign and send it to your local print shop or office supply store to be printed. Post the sign prominently outside your home, at the office, or at a local community center to inspire everyone who sees it to take action and ask about MG. Then share the poster link with friends and family and ask them to do the same!
BUILDING AND LIGHTING STRUCTURES: Read page 23 of the MG Awareness Toolkit to learn more about lighting up local buildings and structures in our traditional teal color. Identify an iconic building and find out who the building management company is. You can ask to have the building lit during a day in June. Start this process in advance, as getting permission can take some time.
Use this HELPFUL SAMPLE LETTER TO THE BUILDING MANAGEMENT COMPANY.
COLOR FOR MG AWARENESS: Relieve stress and color: Check out our brand new #MGStrong coloring page. Great for adults and kids who want to show their commitment to the MG Community by showing that they are always #MGStrong - just like all those living with MG and their caregivers. Take a photo of your artwork and share on social media streams.
DOWNLOAD the COLORING PAGE, print it out, and get creative!
SPREAD THE WORD ON SOCIAL MEDIA USING THESE TOOLS: Share one of the graphics linked below or share a fact a day from our 30 Facts for 30 Days sheet.
Use these prompts to guide your content:
- What do you wish other people knew about having MG?
- How are you advocating for those who have MG – how are you turning awareness into action?
- What does a “day in the life” of a person with MG – or their caregiver or health care professional – look like?
You can also take videos or photos of you engaging in MG Awareness activity - wearing a teal shirt, holding a sign, posting a banner in your yard - and share them with your network.
Click on each link to download the images.
ADVOCACY
PLAN AN EVENT
BE A CAREGIVER
TAKE ACTION
COMMUNITY AWARENESS
Record a video and share on social media: Record an MG awareness video that highlights a call to action and helps people better understand myasthenia. Tell your friends and followers how you're turning awareness into action. Check out this video from members of the MG Community.
MGFA ONLINE STORE: Select apparel and other items to show off your support of the MG Community are available in the MGFA ONLINE STORE. You also can find #MGStrong and MG Snowflake apparel at other custom online retailers, such as Etsy.
Watch Past Recordings of MG Awareness Events for additional ideas
PAINT N’ SIP: More than 100 members of the community joined several artists, including MG patient Erin Bernau, for a fun, online, Paint n’ Sip event. See the recording. Experience this Event Again with Video Recording.
MGFA Wellness Series Webinar about Inspiration: Learn to be positive and hear about inspirational stories of myasthenia community members. View the Video Recording of this Wellness Webinar.
What’s New in MG Research: Update on Rozimab: This is a UCB clinical trial update on Rozimab presented by Dr. Bril. View the Video Recording.
MGFA Southeast Regional Online Conference: Community friends and medical professionals in the Southeast USA joined together online to learn about the latest MG research and best practices. Watch the Event Recording.