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Medical Advisory Council

The purpose of the Medical Advisory Council is to provide strategic partnership to MGFA senior leadership with regards to supporting and fulfilling programmatic initiatives. Expertise, support, and guidance will be critical to the success of the strategic plan and furthering MGFA programs and services. The Council will identify and influence all work carried out by both the Medical & Scientific Advisory Board (MSAB) and the Nurses Advisory Board & Allied Health Partners.

 

Volunteer Leadership

 

Jeffrey Guptill, MD, MA, MHS
Dr. Guptill is Associate Professor of Neurology at Duke University School of Medicine and serves as Director of the Duke Early Phase Clinical Research Unit which is the phase 1 and proof-of-concept clinical trial unit at Duke. He completed a master’s degree in Anatomy & Neurobiology at Boston University School of Medicine and received his medical school training at Medical College of Virginia. He then completed the adult neurology residency program at Duke University Medical Center, followed by neuromuscular medicine/EMG and advanced neuromuscular disease fellowships, also at Duke. His research is supported by NIH, private foundations, and the pharmaceutical industry. He is also a member of the executive committee for the NIH funded rare disease clinical research network for myasthenia gravis (MGNet), where he chairs the natural history study and career enhancement core. He currently serves as the chair of the Medical & Scientific Advisory Board of the Myasthenia Gravis Foundation of America.

 

Annette Zampelli, MSN, CRNP
Annette Zampelli is a family nurse practitioner currently employed as an Infusion Science Specialist for CSL Behring. She functions as an educator, trainer and preceptor in this role. She has been published over 20 times on various topics from asthma and allergies to use of immune globulin either subcutaneously or intravenously in immune deficiency and neurological diseases. She presents regularly at public and professional meetings and conferences. Her over 15 years of experience in immunoglobulin therapy has made her an expert in the field. Her past professional experiences include executive board member and treasurer of the Association of Asthma Educators, vice president and president for the Central PA Association for Nurse Practitioners and member of the nurse advisory committee for the Immune Deficiency Foundation. She continues to be an active member for the Boy Scouts of America as a district representative and holds a chair position for fundraising in this role. Annette is the Chair of the Nurses Advisory Board & Allied Health Partners of the Myasthenia Gravis Foundation of America.

 

Marcia Lorimer, RN, MSN, CRNP
Marcia Lorimer, CPNP, RN is Assistant Professor Emeritus at Duke University School of Nursing, where she served as lead faculty and director of the nationally ranked pediatric nurse practitioner major for many years. She is a graduate of the Mount Sinai Hospital School of Nursing, the City College of New York (BS), Albert Einstein College of Medicine (PNP Certificate), and the University of Virginia (MSN). Marcia was diagnosed with myasthenia at age 10. She has served the MGFA Board in various capacities since being elected to her first term in 1991, including chairperson, committee chair, and NAB representative. She currently serves as the chair of the Audit Committee.

 

Dr. Paul Strumph
Paul Strumph, MD has personal experience with chronic autoimmune diseases, as he was diagnosed with MG in 2019 and type 1 diabetes in 1966. Paul is a consultant in Diabetes and Endocrinology drug development, with over 25 years of experience in the field. He most recently served as Chief Medical Officer at Metavant Sciences. Previously he was Vice President, Clinical Development at Lexicon Pharmaceuticals, where he led global clinical development from early phase 2 work through successful NDA  and MAA filings --achieving EU approval of sotagliflozin, a first in class dual SGLT1 and SGLT2 inhibitor developed as an oral adjunct to insulin in type 1 diabetes. Paul previously held senior executive roles at Quintiles (now IQVIA), the Chief Medical Officer position at the non-profit Juvenile Diabetes Research Foundation (JDRF) and positions of increasing responsibility at GlaxosmithKline, Merck KGaA/EMD, and Bristol-Myers Squibb & Co.  Paul received his undergraduate degree from Wesleyan University, his M.D. with distinction in research from the University of Rochester and completed residency training in Combined Internal Medicine and Pediatrics at Emory University. After completing two fellowships in Adult and Pediatric Endocrinology, he practiced endocrinology for 6 years while serving as a Clinical Associate Professor at UNC in the Departments of Internal Medicine and Pediatrics. Paul is one of only a handful of endocrinologists to be a diplomate of 2 specialty, and 2 subspecialty boards. Paul still sees patients at the Bradley Free Clinic in Roanoke, Virginia.

 

Members of the Medical & Scientific Advisory Board and the Nurses Advisory Board & Allied Health Partners

 

Kevin C. O’Connor, PhD
Dr. Kevin C. O’Connor earned a Bachelor of Science degree in Chemistry from the University of Massachusetts at Amherst and his Ph.D. in Biochemistry at Tufts University Graduate School of Biomedical Sciences. He completed his post-doctoral training in Immunology at Harvard Medical School where he also spent several years on the faculty as an Assistant Professor. He is now on the faculty at Yale School of Medicine, serving as a tenured Associate Professor of Neurology and Immunobiology. He currently serves as the vice chair of the Medical & Scientific Advisory Board of the Myasthenia Gravis Foundation of America.

 

Linda L. Kusner, Ph.D.
Dr. Linda Kusner is affiliated with the George Washington University Medical Center. She, along with Dr. Burns of University of Virginia, organized the 13th International Conference on Myasthenia Gravis and Related Disorders that was held in New York City with the support of New York Academy of Sciences, National Institute of Health, and Myasthenia Gravis Foundation of America.

 

Robert Ruff, MD
Robert L. Ruff, MD, PhD is the former Chair of MGFA’s Medical Scientific Advisory Board. He is a neurologist and biophysicist. Dr. Ruff is professor emeritus of Neurology and Neurosciences at Case Western Reserve University School of Medicine and retired from the Department of Veterans Affairs where he served as acting Director of Rehabilitation Research and Development Service and National Director for Neurology. Dr. Ruff has been involved in MG research and treatment for more than 30 years. Dr. Ruff serves as a member of several committees.

 

Mike Hehir, MD
Dr. Hehir is an Associate Professor and Division Chief of Neuromuscular Medicine in the Department of Neurological Sciences at the Robert Larner, MD College of Medicine at the University of Vermont. As a neuromuscular neurologist, his clinical, research, and educational interests are in the evaluation and management of adult and pediatric patients with neuromuscular disorders, particularly myasthenia gravis. Dr. Hehir has a strong track record of leading collaborative, multi-center clinical research projects related to the care of patients with myasthenia gravis. He is the current co-chair of the Education Committee for the Scientific Advisory Board of the MGFA and was the Co-Chair of the annual MGFA Scientific Session Meeting from 2015 to 2018.

 

Amanda Guidon, MD
Dr. Amanda Guidon is a neuromuscular neurologist at the Massachusetts General Hospital and an Instructor of Neurology at Harvard Medical School.  She graduated from Brown University and received her medical degree from the University of Rochester.  She completed her internship, neurology residency and a two-year neuromuscular fellowship at Duke University Medical Center.

 

For the full list of MGFA’s Medical & Scientific Advisory Board, see here.
For the full list of MGFA’s Nursing Advisory Board & Allied Health Partners, see here.

 

Nursing Research Grant

These grants are awarded annually to nurses or nursing students interested in studying problems encountered by patients with MG or related neuromuscular conditions. 

 

Care of the Patient with Myasthenia Gravis Webinar

The AANN webcast recording from the "Care of the Patient with Myasthenia Gravis" is now available. Please click here to listen.

 

How to Become a Member of our Nurses Advisory Board & Allied Health Partners

If you would like to become a member of this advisory board, please download the application.

A World Without MG