We produce and distribute informational pamphlets and handouts for the general public. These materials provide information on myasthenia gravis, general medications / treatment programs as well as information on our services. For people newly diagnosed with MG, we provide a packet as an introduction to myasthenia gravis, letting them know about ways we can help support them in their journey with MG.
MGFA strives to provide the highest level of customer service to people with MG. We maintain strict confidentiality in handling patient information and treat everyone with equality, respect and courtesy.
Disclaimer: These publications are intended to provide the reader with general information and should be used solely for educational purposes. Materials provided do not address individual patient needs, and should not be used as a basis for decision making concerning diagnosis, care, or treatment of any condition. Instead, such decisions should be based upon the advice of a physician or health care professional who is directly familiar with the patient. The information contained in these publications reflects the views of the authors, but not necessarily those of Myasthenia Gravis Foundation of America (MGFA). Any reference to a particular product, source, or use does not constitute an endorsement. MGFA, its agents, employees, Directors, its Medical/Scientific Advisory Board, and its Nurses Advisory Board or their members make no warranty concerning the information contained in this publication. They specifically disclaim any warranty of merchantability, fitness for any particular purpose, or reliability regarding the information contained herein, and assume no responsibility for any damage or liability resulting from the use of such information.
MGFA Wellness Series Webinars
This set of webinars offers guidance, tips and tricks, and practical information to help you manage your myasthenia and maintain good health and a positive attitude. VIEW WEBINAR REPLAYS AND REGISTER FOR THE NEXT UPCOMING WEBINAR HERE
MGFA What's New in MG Research Webinar Series
Want to learn more about what's new in MG research, clinical trials and treatment studies? Check out our ongoing webinar series that puts the spotlight on key new research outcomes and progress against MG. VIEW WEBINAR REPLAYS AND REGISTER FOR THE NEXT UPCOMING WEBINAR HERE
Know Your Antibodies (December 2019)
While our MG Patient Registry is 3,000 patients strong, the majority of patients do not know their clinical markers for MG. This webinar will provide you with an overview of immunology, the symptoms and functional changes that come with MG, the different types of antibodies in MG and follow-up testing for those antibodies. This webinar will help to answer the following questions: What are antibodies? What is an immune response? What is autoimmunity? How does MG fit into the larger autoimmune disease space? What are antibodies in MG and how are they tested for?
Click here to view this webinar.
Presenter: Pushpa Narayanaswami, MD
Fatigue & MG (July 2019)
This webinar discusses sleep issues, fatigue as well as MG control and how it impacts your daily life. Click here to view this webinar.
Presenters: Wilma Koopman, NP and Raghav Govindarajan, MD
Respiratory Issues & MG (April 2019)
This webinar discusses Respiratory Issues & myasthenia gravis. Click here to view this webinar.
Presenters: Nicholas J. Silvestri, MD
Seronegative MG (January 2019)
This webinar discusses Seronegative myasthenia gravis.
Please note that we experienced audio issues throughout this webinar, so some of the content may have been edited out, or may be difficult to hear. We sincerely apologize for any inconvenience and have planned to include future webinars on this topic. Click here to view this webinar.
Presenters: Charlene Hafer-Macko, MD and Cheryl Heitman, RN
MG & You (November 2018)
This webinar discusses some of the ways that myasthenia gravis can impact different aspects of your life and what you can do about it. Click here to view this webinar.
Presenter: Raghav Govindarajan, MD, FAAN, FISQua, FACSc, FCPP, MAcadMEd, FASA, MRCPS (Glasg), FRSPH
Ocular MG (October 2018)
This webinar discusses the symptoms and management of ocular MG. Click here to view this webinar.
Presenter: Rudrani Banik, MD
Living Your Best Life with MG (November 2017)
The webinar explores strategies for Living Your Best Life with MG, both practical and psychological. Dr. Ruff will discuss approaches and techniques for managing the impact chronic illness has on your life, while Mr. Averack and Mrs. Higgins will discuss on a more personal level how MG affected their lives and their own ways of tackling the challenges. Click here to view this webinar.
Presenters: Suzanne Ruff, PhD, Robert Averack, Rachel Higgins
MG Drugs in Development (November 2017)
An overview of current and recent drug studies being done for myasthenia gravis. Reports on the Soliris (eculizumab) study results and the status of FDA approval. Click here to view this webinar.
Presenters: Robert Ruff, MD, PhD, James Howard, MD
Falls & MG Webinar (February 2017)
Although people living with MG are aware of the impact of falls on their daily life, many healthcare practitioners are not aware that falls are common within the MG community. Presenters developed an online survey to determine the prevalence and frequency of falls and level of concern about falls. The level of concern for falls in relationship to MG and disease severity, as well as the activities that are associated with the greatest fear of falling.
Presenters: Julia Naumes, OTD, OTR/L, Charlene Hafer-Macko, MD
Thymectomy or Not? (November 2016)
This webinar reports on the long-awaited results of the groundbreaking MGTX trial. The trial included 126 patients from across the globe, took 15 years of planning, patient recruitment and follow-up, and is the first ever randomized and blinded study of thymectomy in MG. Click here to view this webinar.
Presenter: Gil Wolfe, MD
MG Treatment Guidelines (November 2016)
Learn about MG Treatment Guidelines developed with leadership from MGFA Medical and Scientific Advisory Board members. These guidelines are the result of a three-year effort to develop agreement among an international group of MG experts on the use of various treatments for people with MG. These guidelines were published in the July 26, 2016 issue of Neurology, entitled the “International Consensus Guidance for Management of Myasthenia Gravis.” This paper is a significant new resource for physicians caring for MG patients. Click here to view this webinar.
Presenters: Don Sanders, MD, Gil Wolfe, MD, Pushpa Narayanaswami, MD, FAAN
Understanding Myasthenia Gravis and Your Child (November 2015)
A leading pediatric neurology expert discusses what parents need to know about the impact of MG on their child. Important information on why and how parents can prepare for the unexpected. Click here to view this webinar.
Presenter: Nancy Kuntz, MD
The Role of Exercise in Taking Control of Your MG (December 2014)
Do you want to know how to make exercise a part of your life while living with MG? Do you wonder how to retain or regain your physical strength? Are you concerned that MG will side-line you when it comes to being active? What about the health benefits of exercise, how can you achieve those while coping with MG? Click here to view this webinar.
Presenter: Charlene Hafer-Macko, MD