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Newly Diagnosed

Are you recently diagnosed with myasthenia gravis (MG)? If so, you are in the right place. One of the best things you can do is arm yourself with as much knowledge about MG as possible. Here you will find information about the latest medications and treatment to manage your MG. Unsure what MG is or how it affects your muscles? Find more information about symptoms here.

 

You and your doctor will formulate the best treatment plan for you, as each person’s experience with MG is different. Feel free to share any information you discover here with your doctor. Need to find an MG doctor? Find a list of MG experts here.

 

Myasthenia gravis is also referred to as the “snowflake disease” because everyone’s MG journey is unique. However, we have a lot in common and can all learn from each other.

 

Want to connect in person? Find an MG support group in your area.

Need someone to talk to about your diagnosis?  Connect with an MG Friend.

 

Help inform research by joining the MG Patient Registry.

 

While there is no cure for MG yet, many people achieve significant reduction in symptoms and even remission by working with their doctor to find the right treatment regimen. For those who do not respond well to current therapies, there is hope. To see what is in the research pipeline, clinical trials and newly approved treatments, see here.

 

In preparation for your doctor's visit, you can review and bring a copy of the MG treatment guidelines with you. The MG treatment guidelines are the result of a three-year effort to develop agreement among an international group of MG experts on the use of various treatments for people with MG. These guidelines were developed with leadership from our Medical and Scientific Advisory Board members and published in the July 26, 2016 issue of Neurology, entitled the “International Consensus Guidance for Management of Myasthenia Gravis.” This paper is a significant new resource for physicians caring for MG patients. To view the webinar on MG Treatment Guidelines, please click here.

 

All people with MG need to be aware of sudden or gradual worsening of symptoms, in particular, issues with speech, swallowing or respirationThese could signal an MG Crisis and require immediate medical attention.

 

With the information here, you will be able to live your best life possible. We are here to help. To help you get started, please email us at mgfa@myasthenia.org for a new patient packet.

A World Without MG