BEGIN:VCALENDAR VERSION:2.0 PRODID:-//wp-events-plugin.com//7.2.3.1//EN BEGIN:VEVENT UID:30@myasthenia.org DTSTART;TZID=America/New_York:20230921T220000 DTEND;TZID=America/New_York:20230921T233000 DTSTAMP:20241028T210311Z URL:https://myasthenia.org/events/research-webinar-series-memgopen-an-inno vative-research-study-with-a-groundbreaking-digital-tool-for-myasthenia-gr avis-2023-09-21/ SUMMARY:Research Webinar Series: ME&MGopen\, an innovative research study w ith a\n groundbreaking digital tool for Myasthenia gravis DESCRIPTION:The Power of Medical Records in MG Research Presented by Emma T ouré Cuq\, International Clinical Trials Manager at Ad Scientiam Septembe r 21\, 2023 @ 3PM Eastern\, 12PM Pacific ME&\;MGopen is a smartphone a pplication developed by Ad Scientiam. It features active tests to assess b reathing\, dysarthria (difficulty speaking)\, ptosis (eyelid drooping)\, a rm and leg weakness. The mobile app also includes online questionnaires re lated to activities of daily living\, pain\, insomnia\, quality of life an d depression. The ME&\;MGopen research study aims to better understand Myasthenia Gravis in real life\, collecting data directly from the patient &rsquo\;s perspective with an exclusive digital tool. The study also aims to collect feedback from participants to improve ME&\;MGopen app. Join this webinar to learn more about the study objectives &\; design and fi nd out about the first insights gathered from the analysis! Ad Scientiam is a young French company created in 2013\, based in Paris. Our team is c omposed of researchers\, data science engineers\, user experience experts\ , interface designers\, web and mobile developers\, clinical project manag ers and medical innovation specialists. We work together in synergy to dev elop the most appropriate digital solutions in collaboration with medical experts and patient associations. At the heart of Ad Scientiam&rsquo\;s pr oject is a conviction: continuously measuring and following the evolution of severe and disabling diseases in real life is the key to better care fo r patients. Ad Scientiam is taking this scientific and technological bet\, so that today each patient can be an actor in their own health and to acc elerate the development of new treatments. We are committed to ensuring th at the medicine of tomorrow is more predictive\, preventive and individual ized. Their use allows Ad Scientiam to provide innovative\, easy-to-use an d intuitive solutions Register for This Webinar ATTACH;FMTTYPE=image/jpeg:https://myasthenia.org/wp-content/uploads/Portal s/0/EasyDNNNews/601/emma-webinar-headerpic-3.jpg CATEGORIES:Events,Webinars END:VEVENT BEGIN:VTIMEZONE TZID:America/New_York X-LIC-LOCATION:America/New_York BEGIN:DAYLIGHT DTSTART:20230312T030000 TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT END:DAYLIGHT END:VTIMEZONE END:VCALENDAR