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UID:39@myasthenia.org
DTSTART;TZID=America/New_York:20230411T220000
DTEND;TZID=America/New_York:20230411T233000
DTSTAMP:20241028T210311Z
URL:https://myasthenia.org/events/research-webinar-series-the-power-of-med
 ical-records-in-mg-research-2023-04-11/
SUMMARY:Research Webinar Series: The Power of Medical Records in MG Researc
 h
DESCRIPTION:The Power of Medical Records in MG Research Presented by Ashant
 hi De Silva April 11\, 2023 @ 3PM Eastern\, 12PM Pacific PicnicHealth is a
  real-world data research health tech company committed to accelerating re
 search in rare and chronic conditions. Their observational study in myasth
 enia gravis (MG) examines de-identified medical record information to help
  researchers get a holistic picture of the real impact of MG and find answ
 ers that can&rsquo\;t be found in clinical trials alone. If you are living
  with or caring for someone with myasthenia gravis (MG) and are looking to
  get involved in MG research from home\, join us April 11!   During the we
 binar\, Ashanthi De Silva\, Community Partnerships Manager at PicnicHealth
 \, will talk about how contributing de-identified medical records can adva
 nce MG research\, and how PicnicHealth&rsquo\;s innovative digital tool he
 lps keep all your medical records and imaging at your fingertips\, allowin
 g you to share it with whomever you&rsquo\;d like. There will be a Q&amp\;
 A session\, so please come prepared to ask your questions.    To learn mor
 e about PicnicHealth&rsquo\;s MG study\, visit https://picnichealth.link/m
 yastheniagravisstudy  Ashanthi De Silva is a professional patient advocate
  who is passionate about collaborating with underrepresented communities i
 n health care and research\, and uses her strategic communications and hea
 lth expertise to empower and engage patient voices in the rare disease spa
 ce. She currently works for PicnicHealth\, a real-world data research orga
 nization connecting rare and chronic disease communities with accessible o
 pportunities in research. Please register for the webinar using the form b
 elow.  
ATTACH;FMTTYPE=image/jpeg:https://myasthenia.org/wp-content/uploads/Portal
 s/0/EasyDNNNews/564/AshanthiDeSilva-3.jpg
CATEGORIES:Events,Webinars
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