2024 National Patient Conference, Tampa, FL
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2024 National Patient Conference, Tampa, FL

2024 National Patient Conference, Tampa, FL

By Nick Patrone
Event date: 4/28/2024 - 4/30/2024 Export event

Westin Tampa Waterside

Tampa, Florida

April 28-30, 2024

 

Registration is now closed. If you missed the registration deadline, you can watch sessions on the MGFA's YouTube channel after the conference. Be sure to subscribe to our channel or sign up for MGFA Events emails to find out as soon as these recordings are available.

 

The annual MGFA National Patient Conference is the largest and most complete gathering of the MG Community. Every year, attendees include people living with MG, caregivers and family members, and MG experts including researchers, clinicians, and medical professionals. The conference features MG research information and updates, informative discussions with patients and community members in the MG space, news about MG treatments and discoveries, and many exciting educational topics to help you and your family better manage your MG journey.

 

The MGFA National Patient Conference will take place April 28-30, 2024, at the beautiful Westin Tampa Waterside in Tampa, Florida.

 

This year, there is no registration fee for patients and caregivers! We hope this will help make the conference more accessible to the MG Community. We’re grateful to our generous partners for making this possible.

 

We also offer a virtual option for those who cannot travel. Sessions are on Zoom, and virtual attendees can gather in the MGFA Online Community. Watch sessions, ask questions, and chat with other virtual attendees. Make sure you are a member of the Online Community before the conference.

 

Event Agenda*

 

Download a PDF of the Full Agenda

 

Sunday, April 28

9:00 – 11:30 a.m. – Volunteer Workshop (by invitation only)

1:30 – 3:00 p.m. – MG 101 - The Basics of Myasthenia Gravis

2:30 – 4:30 p.m. – Networking Opportunities

5:00 p.m. – Keynote with Tuan Vu, MD, and Welcome Dinner/MGFA Volunteer and Service Awards

 

Monday, April 29

8:30 a.m. – Attendee Breakfast

9:00 – 10:00 a.m. – MG Antibodies and What They Mean to You

10:00 – 10:30 –  At Home Exercise / Break

10:30 – 11:30 a.m. – The MG Patient-Provider Perspective: A Moderated Discussion

11:30 a.m. – 12:45 p.m. – Attendee Lunch

12:45 – 1:00 p.m. – The Value of Community Fundraising

1:00 – 2:00 p.m. – Breakout Sessions: (1) The Seronegative Experience; (2) Myasthenia Advocacy for Young Adults (MAYA); and (3) Healthy Eating Presentation and Demo (Note: The MAYA session is for patients and caregivers only.)

2:00 – 2:30 p.m. – At Home Exercise / Break

2:30 – 3:00 p.m. – Caring for the Caregiver

3:00 – 3:30 p.m. – The MG Journey: More Than Medicine

6:30 p.m. – Community Celebration Dinner

 

Tuesday, April 30

8:00 a.m. – Attendee Breakfast

8:30 – 8:45 a.m. – The MGFA Horizon in 2024 and Closing Remarks from President and CEO Samantha Masterson

8:45 – 9:30 a.m. – Elevating the Patient Voice in Research and the MGFA Global Patient Registry

9:30 – 10:00 a.m. – The Power of Dog Therapy

10:00 – 10:30 a.m. – Health Eating Presentation and Demo / Break

10:30 – 11:00 a.m. – The Latest Updates in MG Clinical Trials

11:00 – 11:30 a.m. – Capturing the Voices of People Living with MG – Insights & Perspectives to Help Drive Improvement in the Management of MG

11:30 a.m. – 12:00 p.m. – Taking Charge of Your Care: MG and Emotional Health

12:00 – 1:30 p.m. – Attendee Lunch and Conference Conclusion

 

*Agenda is subject to change. Not all sessions will be available for virtual participants. Download full agenda for more details on each session.

 

Registration and Fees

 

Registration is now closed. If you are an industry or medical professional who needs to pay your registration fee, please plan to pay your fee on site.

 

If you miss the registration deadline, you can watch sessions on the MGFA's YouTube channel after the conference. Be sure to subscribe to our channel or sign up for MGFA Events emails to find out as soon as these recordings are available.

 

 

In Person – Early Bird
Register by February 28

In Person
Register by April 14

Virtual

Register by April 14 Extended to April 25!

In Person
On Site Registration

Patient or Caregiver

CLOSED CLOSED CLOSED

Free

Health Care Provider

CLOSED

CLOSED

CLOSED

$650

Industry Partner

CLOSED

CLOSED

CLOSED

$800

 

 

Venue

All events take place at the Westin Tampa Waterside. This beautiful, modern hotel is located in the heart of Tampa, near Tampa International Airport and steps from restaurants and the waterfront. Walk or take a short water taxi ride to the Florida Aquarium, Tampa History Center, Channelside Bay Plaza, and the Tampa Riverwalk. A quick drive takes you to the Ybor City Historic District or downtown Tampa for dining and shopping.

 

Westin Tampa Waterside
725 S Harbour Island Blvd
Tampa, FL 33602
View Map

 

Rooms at the hotel are now sold out during the conference weekend

 

Valet parking is available for a $45/day fee. Several garages are also available near the hotel.

 

To Do in Tampa

Learn more about what to do in the Tampa Bay Area while you’re in town, including mobility-friendly and accessible attractions and resources.

 

 

 

 

National Presenting Partners

 

Alexion  argenx     Janssen

National Collaborator

 

 Horizon

National Supporters

 

accrued  catalyst UCB UCB UCB UCB

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