Whether virtual, in person or in a hybrid model, MGFA support groups are a wonderful way to learn more about managing MG and to receive caring support. In addition to groups organized by location or type (in person / virtual), MGFA offers the following virtual specialty support groups:
- Seronegative Myasthenia Gravis
- MAYA (Myasthenia Advocacy for Young Adults)
- Junta en Español (Spanish Language)
- Caregivers
- Pediatric (Children and Teens) – please use this form to register
- Parenting with Myasthenia Gravis
Upcoming MGFA Support Group meetings are listed BELOW or SEARCH by state, region, dates, or type. Have questions? Reach out to us at mgfa@myasthenia.org. You can also reach out to any support group leader; contact emails are provided for each group.
WANT TO VOLUNTEER TO RUN A SUPPORT GROUP?
If you are interested in helping run a support group or starting a new one, fill out the Support Group Leader Volunteer form.
Volunteer with a Support Group
OPINION DISCLAIMER
The views and opinions communicated at, or related to, any MGFA support group meeting, are those of the author(s). MGFA is not responsible for the author’s views and opinions and, unless expressly indicated, nothing shared at, or related to, the MGFA support group meetings are meant to reflect the official views, opinions, policies, or positions of MGFA. Further, nothing communicated at, or related to, any MGFA support group meeting is intended to harm any protected group, organization, entity, or individual.
Parenting with MG
NEW SUPPORT GROUP
Geared toward those who are raising kids while living with MG, this support community will be a wonderful resource for parents, those who are expecting, and even those considering parenthood. We’ll learn from one another, share helpful hacks, and hear from experts in the field. Be part of a positive, problem-solving community where you matter.
There are two meeting options – join the one that works for your schedule. We’ll determine a permanent schedule for meetings from there.
Wednesday, October 16, 12:00 PM Eastern / 9:00 AM Pacific
Register for Zoom
https://us06web.zoom.us/meeting/register/tZMucuisqDkuEtbi3DcJg-5PDOpFiErbrsnn
Wednesday, October 16, 7:00 PM Eastern / 4:00 PM Pacific
Register for Zoom
https://us06web.zoom.us/meeting/register/tZ0lduyvrD8uGtYDP1uwoXkY-n61NVlh38NR
For more information, email lead Janel Worcester at janelworcester@gmail.com
Caregiver Support Group
MEETING IS ON HOLD FOR NOW. PLEASE CHECK BACK FOR UPDATES
IF YOU HAVE ANY QUESTIONS, PLEASE EMAIL MGFA@MYASTHENIA,ORG
Meets the Third Wedenesday of the month, 9:00 pm Eastern Time via Zoom.
Register in advance for this meeting here. After registering, you will receive a confirmation email containing information about joining the meeting.
For questions, please contact Toni Gitles at tinigitles@gmail.com
Bethesda,Md Support Group
The Bethesda, MD, Support Group meets the third Saturday of the month from 10:00AM to 12:00PM Eastern Time via Zoom. Meetings are: Sept. 21; Oct. 19; Nov. 16; Dec. 21, 2024; Jan. 18, 2025; Feb. 15, Mar. 15 at 10:00AM.
For Information contact: Alan Sinclair, Bethesda Support Group Leader: 301-474-7745 or alsin6206@verizon.net
Both the Bethesda, MD, MG Support Group and our sister group, the Glen Burnie, MD, Support Group are meetings of persons with MG, MG caregivers, and any person who wants to know more about MG to discuss treatments, medications, how we’re coping with MG, etc., via ZOOM. Eventually the Bethesda Group hopes to be able to return to in-person meetings at Suburban Hospital in Bethesda as well as continuing ZOOM meetings. Our meetings on ZOOM and when in-person are very informal. I usually send the meeting ZOOM link information the weekend before the meeting. We try to carry a positive emphasis about our common disability. Anyone is welcome at both meetings.
Southeastern Wyoming
The first MGFA support group in Wyoming is here. This group will meet in person on the 4th Tuesday of each month. The group will “soft launch” in October and take a break over the winter holidays, then back in January.
Tuesday, October 22
Register: Email SGWyoMGgroup@gmail.com
Locations vary within the Cheyenne area
Phoenix Support Group
Meets via Zoom the 4th Tuesday of the month at 5:00PM AZ time
Join Zoom Meeting
https://us06web.zoom.us/j/84898334847?pwd=4i606qRHuNIWAQbfghtoIJM0LAMKwV.1
Meeting ID: 848 9833 4847
Passcode: 708893
San Diego MG Support Group
Find support and resources in the San Diego area. This group will meet the 4th Tuesday of the month via Zoom. All virtual support groups are open to patients and caregivers who would like to connect with others in the MG Community – living in San Diego is not required.
3:00 PM Eastern / 6:00 PM Pacific
Register: https://us06web.zoom.us/j/4609723336?
CONTACT INFORMATION
Contact: Andrea Divis
For more information, email lead Andrea at mgsandiegogroup@gmail.com
Glen Burnie,MD Support Group
The Glen Burnie, MD, Support Group meets the first Saturday of the month from 10:00AM to 13:00PM Eastern Time via Zoom. The Meetings are: Sept. 07; Oct. 05; Nov. 02; Dec. 07, 2024; Jan. 04, 2025; Feb. 01; Mar. 01 at 10:00AM. The Glen Burnie Group does not meet if the 1st Saturday of the month is a Federal holiday weekend.
For Information contact: Butch Jones, Glen Burnie Support Group Co-Leader: butchserves@gmail.com or Marika Bates, Glen Burnie Support Group Co-Leader: marika.bates@gmail.com
Both the Bethesda, MD, MG Support Group and our sister group, the Glen Burnie, MD, Support Group are meetings of persons with MG, MG caregivers, and any person who wants to know more about MG to discuss treatments, medications, how we’re coping with MG, etc., via ZOOM. Eventually the Bethesda Group hopes to be able to return to in-person meetings at Suburban Hospital in Bethesda as well as continuing ZOOM meetings. Our meetings on ZOOM and when in-person are very informal. I usually send the meeting ZOOM link information the weekend before the meeting. We try to carry a positive emphasis about our common disability. Anyone is welcome at both meetings.
MG RGV Support Group Meeting (Rio Grande Valley)
MG RGV Support Group Meeting Information:
First Saturday of each month at 10:00 a.m. in Knapp Medical Conference Building, 1401 E 8th St., Weslaco, TX, Conference Room #1
For questions, please contact Karen Mau at maubillkaren@live.com or Phone 956-254-3510
Hampton Roads MG Support Group
**NEW – Support Group**
Meetings will be held in person on the first Saturday of each month, at 11 am at
Careplex Hospital in Hampton, Virginia (3000 Coliseum Drive)
There will also be virtual meetings held the second Monday of each month, at noon (please see other listing)
For more info, please contact Greg Josephs greg.josephs2@gmail.com or David Aguilar ramblon007@cox.net
New England Support Group
Sunday, November 3rd – 2:00 to 4:00 pm Et
Please register in advance
https://us06web.zoom.us/meeting/register/tZ0scO-hrjgvHdeNpfetqjclQ3GvziyvIXlE
For questions, please contact mgfanegroup@gmail.com or call (508) 936-3438.