Have you or someone you know been diagnosed with myasthenia gravis?
Now what? Do you have questions?
Do you feel like you are on an “MG island” alone?
Well, you are NOT alone – You already have an MG Friend.
The MG Friends program connects people with myasthenia gravis and their caregivers to experienced, trained MG patients who can share common experiences and help you manage life with MG. Are you looking for personalized support? Connect with an MG Friend right away.
How It Works
MG Friends are here to support you! This free peer-to-peer support program helps ensure that you have the information you need to face this diagnosis and improve your quality of life.
MGFA will match you with an MG Friend who has similar needs so you can get the answers and support that you need. Your friend will call, text, Zoom or email — whichever format works best for you — to answer your questions or just to talk.
Are you a caregiver or a family member of someone with MG? You deserve an MG Friend, too! We have volunteers who are in caregiving roles and can support you.
A Personal Connection
While Support Groups are critical to service delivery, many people are not able to access or travel to support groups. And many feel more comfortable talking one-on-one than sharing experiences in a group setting. MG Friends provides the opportunity for a person with questions and concerns to connect to someone else who understands—no matter where they live in the United States.
Share ideas, goals, fears, and experiences in a private, non-recorded environment.
Learn about and implement new management techniques.
Benefit from other people’s personal MG experiences.
Enroll in MG Friends
Do you have questions? Contact us at MGFA@myasthenia.org or at 1-800-541-5454.
Become an MG Friend
If you have lived with MG and want to share your experiences with newly diagnosed people, enroll here.
MG Friends Frequently Asked Questions:
What kinds of questions can I ask?
We encourage you to ask questions about support, resources, and guidance on general, every-day life with MG. MG Friends are here to offer support and advice to help you manage MG or a caregiving role. They are not medical professionals and cannot provide medical advice or guidance.
Do I pick my own MG Friend?
If you would like to talk to someone who has had a specific experience — for instance, someone who has seronegative MG or who is the same stage of life as you — please let us know. MGFA’s trained staff will do our best to match you with an MG Friend who is best suited to address your questions and provide good advice.
Should I have a set of questions ready?
You certainly can if you want, but many times, MG Friends know what to ask and how to direct the conversation so you obtain the greatest benefit possible.
Do I need to be diagnosed with MG to participate?
This service is for people with MG and for their caregivers. When you enroll, you can let us know which description fits you, and we will match you with the best fit. Don’t be afraid to reach out and ask for help.
How many times should I expect to talk to my MG Friend?
That’s up to you. An MG Friend will be there to talk as many or as few times as you need to get your questions answered and find the support you need. You can meet with your MG Friend over Zoom, talk on the phone, text, or email — it’s up to you.
Thank You to Our Partners
