Resources & Assistance

National Organization for Rare Disorders (NORD) Adds MG to RareCare Support Network

NORD has added myasthenia to its RareCare support network. The network provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. https://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs-2/

Now, eligible MG patients can qualify for support paying for out-of-pocket health care costs, including health insurance premiums, deductibles, copayments and coinsurance.  MG joins a host of other disease areas included for patient assistance.  You can find out more about the MG Patient Assistance Programs and other supportive patient assistance from NORD. bit.ly/NORDAssistance.  Also, see the current Brochure from NORD HERE.

List of Resources and Assistance Programs for Myasthenia Patients

*MGFA does not endorse the following organizations or products, but seeks to provide additional resources for those with myasthenia gravis

Caregiver Resources   Employment  Legal Assistance   Medical Equipment & Assistive Technology   Medical & Prescription Assistance   Medical Travel   Mental Health   Parents’ Resources   Prescription Assistance   Privacy Protection   Public Benefits   Social Services

Caregiver Resources

• Chronic Care Connection
• Eldercare Locator

• Family Caregiver Alliance/National Center on Caregiving

• National Alliance for Caregiving

• Rosalynn Carter Institute for Caregiving

• Caregiver Action Network

Employment

• AbilityJobs
• U.S. Equal Employment Opportunity Commission
• U.S. Department of Labor - Disability Hiring
• Job Accommodation Network (JAN)
  • ​The Job Accommodation Network (JAN) is a free consulting service that provides information about job accommodations, the Americans with Disabilities Act (ADA), and the employability of people with disabilities.
  • Tel: (877) 781-9403
  • Email: jan@askjan.org
  • Guidance on requests for reasonable accommodations, Sample Medical Inquiry form, courtesy of the Job Accommodation Network (JAN)
• American Disabilities Act (ADA)
  • Specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 9:30 a.m. until 5:30 p.m. or on Thursday from 12:30 p.m. until 5:30 p.m. (Eastern Time). Calls are free and confidential.
  • Tel: (800) 514-0301
• Office of Disability Employment Policy (ODEP)
  • ​The Office of Disability Employment Policy is an agency within the U.S. Department of Labor. ODEP provides national leadership to increase employment opportunities for adults and youth with disabilities while striving to eliminate barriers to employment.
  • Tel: (866) 633-7365

Legal Advocacy

• Health Law Advocates
• Patient Advocacy LTD 
• Patient Advocate Foundation
   

Medical Equipment, Assistive Technology & Alert Devices

• Assistive Technology Recycling Programs, State Assistive Technology Program Directory
• MedicAlert Foundation
• Foundation for Rehabilitation Equipment & Endowment
• The Wheelchair Foundation
• The American Wheelchair Mission
• Friends of Disabled Adults & Children (FODAC) 
• Lighthouse Guild (vision impairment)
• Coolture cooling vests
• Polar Products cooling vests
• Thermapparel cooling vests
   

Medical & Prescription Assistance

• Medicine Assistance Tool (formerly Partnership for Prescription Assistance)
• RxHope
• RxAssist
• Conquer MG Patient Assistance Program
• Patient Services Incorporated
• Valeant Patient Assistance Program
• IVIG Financial Assistance Resources, courtesy of Neuropathy Action Foundation
• Novartis Patient Assistance Program
• Genentech Patient Assistance Program
• Sanofi Patient Assistance Program
• Medicare Prescription Coverage (Part D)
• The Assistance Fund
   

Medical Travel Assistance

• Patient Travel Referral Program
• Angel Flight
• Angel Wheels
• Mercy Medical Angels

Mental Health Assistance

• National Alliance on Mental Illness
• Mental Health America
• American Psychological Association

Parents of Children with MG

• American Psychological Association
• The American Academy of Pediatrics at HealthyChildren.org
• Center for Parent Information & Resources (Section 504)
• University of Michigan Parent Resources for Children with Chronic Conditions
• Kids Health
• Bandaides & Blackboards, Lehman College
• Guidelines for School Educators and Administrators (Section 504 of the Rehabilitation Act of 1973)
• Individuals with Disabilities Education Act (IDEA) resources, courtesy of the American Psychological Association
• Women’s and Children’s Health Network, Parenting and Child Health
• Pacer Center: Champions for Children with Disabilities 
• IDEA Partnership, U.S. Department of Education

Prescription Discount Cards

• The Medicine Program 
• Together Rx Access

Protecting Your Information & Privacy

• Privacy Rights Clearinghouse 
• HealthIT.gov

Public Benefits Information & Online Screening

• Benefits.Gov
• National Council on Aging
• Medicare Rights Center
• Social Security 
• Social Security for People with Disabilities (SSD, SSI)
   

Social Services Near You

• Aunt Bertha