Resources & Assistance

Caregiver Resources | Employment | Legal Advocacy | Financial Services | Medical Equipment & Assistive Technology | Medical & Prescription Assistance | Medical Travel | Mental Health | Parents’ Resources | Prescription Assistance | Privacy Protection | Public Benefits | Social Services

Caregiver Resources

• Chronic Care Connection
• Eldercare Locator

• Family Caregiver Alliance/National Center on Caregiving

• National Alliance for Caregiving

• Rosalynn Carter Institute for Caregiving

• Caregiver Action Network

Employment

• AbilityJobs
• U.S. Equal Employment Opportunity Commission
• U.S. Department of Labor - Disability Hiring
• Job Accommodation Network (JAN)
  • ​The Job Accommodation Network (JAN) is a free consulting service that provides information about job accommodations, the Americans with Disabilities Act (ADA), and the employability of people with disabilities.
  • Tel: (877) 781-9403
  • Email: jan@askjan.org
  • Guidance on requests for reasonable accommodations, Sample Medical Inquiry form, courtesy of the Job Accommodation Network (JAN)
• American Disabilities Act (ADA)
  • Specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 9:30 a.m. until 5:30 p.m. or on Thursday from 12:30 p.m. until 5:30 p.m. (Eastern Time). Calls are free and confidential.
  • Tel: (800) 514-0301
• Office of Disability Employment Policy (ODEP)
  • ​The Office of Disability Employment Policy is an agency within the U.S. Department of Labor. ODEP provides national leadership to increase employment opportunities for adults and youth with disabilities while striving to eliminate barriers to employment.
  • Tel: (866) 633-7365

Financial Services

Hot News: Apply for the Emergency Broadband Benefit

The FCC announced that on May 12, 2021, eligible households will be able to apply for the Emergency Broadband Benefit.

“Families in every corner of the country have been struggling to get online throughout this pandemic. For those families, we now say ‘help is around the corner.’ In less than two weeks, we will have a new way for disconnected Americans to access the internet to carry out their day-to-day life, so they can reach the virtual classroom, take advantage of telehealth, and seek new employment opportunities.” 

Beginning on May 12 households can apply in three ways: 

1. Contact your preferred participating broadband provider directly to learn about their application process.  
2. Go to GetEmergencyBroadband.org to apply online and to find participating providers near you. 
3. Call 833-511-0311 for a mail-in application, and return it along with proof of eligibility to: Emergency Broadband Support Center 

P.O. Box 7081  

London, KY 40742 

Materials that partners can use to help promote the Emergency Broadband Benefit to the communities they serve will be available soon on www.fcc.gov/emergency-broadband-benefit-outreach-toolkit.

National Organization for Rare Disorders (NORD) Adds MG to RareCare Support Network

NORD has added myasthenia to its RareCare support network. The network provides assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. https://rarediseases.org/for-patients-and-families/help-access-medications/patient-assistance-programs-2/

Now, eligible MG patients can qualify for support paying for out-of-pocket health care costs, including health insurance premiums, deductibles, copayments and coinsurance.  MG joins a host of other disease areas included for patient assistance.  You can find out more about the MG Patient Assistance Programs and other supportive patient assistance from NORD. bit.ly/NORDAssistance.  Also, see the current Brochure from NORD HERE.

List of Resources and Assistance Programs for Myasthenia Patients

*MGFA has not directly contributed to materials from the following organizations or products, and we do not have direct agreements or partnerships with these organizations, but MGFA is committed  to offering these additional resources for those with myasthenia gravis

Legal Advocacy

• Health Law Advocates
• Patient Advocacy LTD 
• Patient Advocate Foundation
   

Medical Equipment, Assistive Technology & Alert Devices

• Assistive Technology Recycling Programs, State Assistive Technology Program Directory
• MedicAlert Foundation
• Foundation for Rehabilitation Equipment & Endowment
• The Wheelchair Foundation
• The American Wheelchair Mission
• Friends of Disabled Adults & Children (FODAC) 
• Lighthouse Guild (vision impairment)
• Coolture cooling vests
• Polar Products cooling vests
• Thermapparel cooling vests
   

Medical & Prescription Assistance

• Medicine Assistance Tool (formerly Partnership for Prescription Assistance)
• RxHope
• RxAssist
• Conquer MG Patient Assistance Program
• Patient Services Incorporated
• Valeant Patient Assistance Program
• IVIG Financial Assistance Resources, courtesy of Neuropathy Action Foundation
• OneSource Personalized Patient Support from Alexion
• Novartis Patient Assistance Program
• Genentech Patient Assistance Program
• Sanofi Patient Assistance Program
• Medicare Prescription Coverage (Part D)
• The Assistance Fund
   

Medical Travel Assistance

• Patient Travel Referral Program
• Angel Flight
• Angel Wheels
• Mercy Medical Angels

Mental Health Assistance

• National Alliance on Mental Illness
• Mental Health America
• American Psychological Association

Parents of Children with MG

• American Psychological Association
• The American Academy of Pediatrics at HealthyChildren.org
• Center for Parent Information & Resources (Section 504)
• University of Michigan Parent Resources for Children with Chronic Conditions
• Kids Health
• Bandaides & Blackboards, Lehman College
• Guidelines for School Educators and Administrators (Section 504 of the Rehabilitation Act of 1973)
• Individuals with Disabilities Education Act (IDEA) resources, courtesy of the American Psychological Association
• Women’s and Children’s Health Network, Parenting and Child Health
• Pacer Center: Champions for Children with Disabilities 
• IDEA Partnership, U.S. Department of Education

Prescription Discount Cards

• The Medicine Program 
• Together Rx Access

Protecting Your Information & Privacy

• Privacy Rights Clearinghouse 
• HealthIT.gov

Public Benefits Information & Online Screening

• Benefits.Gov
• National Council on Aging
• Medicare Rights Center
• Social Security 
• Social Security for People with Disabilities (SSD, SSI)
   

Social Services Near You

• Aunt Bertha