Caregiver Resources | Employment | Legal Advocacy | Financial Services | Medical Equipment & Assistive Technology | Medical & Prescription Assistance | Medical Travel | Mental Health | Parents’ Resources | Prescription Assistance | Privacy Protection | Public Benefits | Social Services | Farm Fresh to You
*MGFA has not directly contributed to materials from the following organizations or companies, but provide this list as a resource to evaluate which options may be right for you.
MGFA partners with The Patient Helpline to provide MG patient support and navigation services
The Patient Helpline is a patient support and navigator program that provides online, email, and phone support to help connect patients to the services they need.
The Patient Helpline is here to help patients, caregivers, and allies find solutions when they are not sure how to find them on their own. The services may be out there; their Navigators can help people find them.
The Patient Helpline can…
- Find an organization that specializes in addressing your specific concern at the federal, state, or local level.
- Give you websites and phone numbers to problem-solving agencies.
- Share the solutions that have already been proven to help others.
- Listen with care and compassion to your need.
The Patient Helpline is a program of Patients Rising. Formed in 2015 as a 501(c)3, Patients Rising has developed a significant following of over 110,000 patients and caregivers and has guided more than 25,000 of them on their journeys to advocate for themselves and their loved ones to get the care and treatments they need to live a fulfilling life.
Stuck? Call 800-685-2654 or email HELP@patientsrising.org
Caregiver Resources
- Chronic Care Connection
- Eldercare Locator
- Family Caregiver Alliance/National Center on Caregiving
- National Alliance for Caregiving
- Rosalynn Carter Institute for Caregiving
- Caregiver Action Network
Employment
- AbilityJobs
- U.S. Equal Employment Opportunity Commission
- U.S. Department of Labor – Disability Hiring
- Job Accommodation Network (JAN)
- The Job Accommodation Network (JAN) is a free consulting service that provides information about job accommodations, the Americans with Disabilities Act (ADA), and the employability of people with disabilities.
- Tel: (877) 781-9403
- Email: jan@askjan.org
- Guidance on requests for reasonable accommodations, Sample Medical Inquiry form, courtesy of the Job Accommodation Network (JAN)
- American Disabilities Act (ADA)
- Specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 9:30 a.m. until 5:30 p.m. or on Thursday from 12:30 p.m. until 5:30 p.m. (Eastern Time). Calls are free and confidential.
- Tel: (800) 514-0301
- Office of Disability Employment Policy (ODEP)
- The Office of Disability Employment Policy is an agency within the U.S. Department of Labor. ODEP provides national leadership to increase employment opportunities for adults and youth with disabilities while striving to eliminate barriers to employment.
- Tel: (866) 633-7365
Financial Services
The Assistance Fund: Helps with Medical Out-of-Pocket Costs for MG Patients
Millions of people don’t have access to the medicines they need because they can’t afford them. The Assistance Fund believes nothing should stand between you and your treatment.
If you are eligible for support, we provide financial assistance to cover costs not paid by insurance. The Assistance Fund is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.
We have added patients diagnosed with myasthenia gravis to our program, and you can apply. We will work with eligible patients to help cover FDA-approved medications that treat myasthenia.
LEARN MORE by visiting The Assistance Fund website or call (855) 845-7608
Eligible patients will be a:
- U.S. citizen or permanent resident.
- Diagnosed with MG.
- Prescribed an FDA-approved treatment for the disease.
- Have prescription coverage for the prescribed treatment.
- Meet financial eligibility criteria based upon household income and size.
Since our founding in 2009, The Assistance Fund has helped more than 160,000 children and adults access the treatment they need to stay healthy or manage a life-threatening, chronic, or rare disease.
PAN Foundation Provides Financial Assistance for Prescription Medication
People with myasthenia gravis can get help paying for out-of-pocket costs associated with their perscription medication.
Since 2004, the PAN Foundation has provided over $4 billion in financial assistance to some one million patients with more than 70 different diseases. MGFA is one of 25 leading national patient advocacy groups around the country allied with the organization to help support patient needs.
The foundation supports people with many different types of rare and chronic diseases, including myasthenia gravis.
The PAN Foundation provides three types of funding to patients:
- Medication copays, deductibles, and coinsurance.
- Health insurance premiums.
- Transportation costs associated with treatment.
Funding grants cover the average annual out-of-pocket cost for FDA-approved prescription medications for that disease. For MG in 2023, that’s $9,100 per year, per patient. The foundation also covers up to $500 per year in transportation reimbursement.
There are several specific eligibility criteria for an MG patient to qualify for assistance. These include being a U.S. resident and having Medicare insurance and a qualifying income. Learn much more about the process and qualifications for grant awards at panfoundation.org.
This MGFA-hosted webinar from fall 2023 also shares some great information about the PAN Foundation’s resources for people living with MG.
Legal Advocacy
Medical Equipment, Assistive Technology & Alert Devices
- Assistive Technology Recycling Programs, State Assistive Technology Program Directory
- MedicAlert Foundation
- Foundation for Rehabilitation Equipment & Endowment
- The Wheelchair Foundation
- The American Wheelchair Mission
- Friends of Disabled Adults & Children (FODAC)
- Lighthouse Guild (vision impairment)
- Polar Products cooling vests
- Thermapparel cooling vests
Medical & Prescription Assistance
- Medicine Assistance Tool (formerly Partnership for Prescription Assistance)
- RxHope
- RxAssist
- Conquer MG Patient Assistance Program
- Patient Services Incorporated
- Valeant Patient Assistance Program
- IVIG Financial Assistance Resources, courtesy of Neuropathy Action Foundation
- OneSource Personalized Patient Support from Alexion
- Novartis Patient Assistance Program
- Genentech Patient Assistance Program
- Sanofi Patient Assistance Program
- Medicare Prescription Coverage (Part D)
- The Assistance Fund
- The Pan Foundation
Medical Travel Assistance
Mental Health Assistance
Parents of Children with MG
- American Psychological Association
- The American Academy of Pediatrics at HealthyChildren.org
- Center for Parent Information & Resources (Section 504)
- University of Michigan Parent Resources for Children with Chronic Conditions
- Kids Health
- Bandaides & Blackboards, Lehman College
- Guidelines for School Educators and Administrators (Section 504 of the Rehabilitation Act of 1973)
- Individuals with Disabilities Education Act (IDEA) resources, courtesy of the American Psychological Association
- Women’s and Children’s Health Network, Parenting and Child Health
- Pacer Center: Champions for Children with Disabilities
- IDEA Partnership, U.S. Department of Education
Prescription Discount Cards
Protecting Your Information & Privacy
Public Benefits Information & Online Screening
- Benefits.Gov
- National Council on Aging
- Medicare Rights Center
- Social Security
- Social Security for People with Disabilities (SSD, SSI)
- Affordable Connectivity Program