• Set Text Size  
   

Privacy Policy

Thank you for visiting our web site and reviewing our privacy policy. Our privacy policy is clear: We will not collect any personal information about you when you visit our web site unless you choose to provide that information to us. Here is how we handle information about your visit to our web site:

 

Information Collected and Stored Automatically

If you do nothing during your visit but browse through the web site, do searches, read pages, or download information, we will automatically gather and store certain information about your visit. This information does not identify you personally. No information about users/visitors will be sold, shared, or utilized in any commercial way. We automatically collect and store only the following information about your visit:

  • The Internet domain (for example, "company.com" if you use a private Internet access account, or "yourschool.edu" if you connect from a university's domain) and IP address (an IP address is a number that is automatically assigned to your computer whenever you are surfing the Web) from which you access our web site;
  • the type of browser and operating system used to access our site;
  • the date and time you access our site;
  • the searches you make;
  • the pages you visit; and
  • if you linked to this site from another web site, the address of that web site.

We use this information to help us make our site more useful to visitors -- to learn about the number of visitors to our site, what part of the site they are interested in, how long they use the site, and the types of technology our visitors use. WE DO NOT TRACK OR RECORD INFORMATION ABOUT THE IDENTITY OF INDIVIDUALS AND THEIR VISITS.

 

Sometimes we write a small file on the user's computer called a "session cookie." Session cookies automatically expire when users leave a Web site; session cookies retain information only during the session or for the purpose of completing a particular online transaction, without any capacity to track users over time and across different web sites. Other than a session cookie, and the six items described above, we do not obtain any information from the user or the user's computer. We do not use "persistent cookies" and fully comply with the HHS IRM Policy for Usage of Persistent Cookies, HHS-IRM-2000-0009; this policy prohibits the use of persistent cookies and permits the use of session cookies.

 

If You Send Us Personal Information

If send us e-mail, or send a message via our "Feedback," or any form found on our site, your identity and the contents of your message are covered by the Privacy Act. Be assured that:

  • The information will not be shared with anyone not on the staff of Myasthenia Gravis Foundation of America.
  • Your e-mail address will not be provided to any third party.
  • MGFA does not share, sell, trade, or rent your personal information with/to others.

The use we will make of your information is to

  • Consider your suggestions.
  • Possibly respond directly to you for clarification.
  • Process your request for materials if you make one.
  • Try and answer your questions if you ask them.
  • Send you information regarding MGFA.
  • Solicit donations.

Our Commitment To Children's Privacy

Protecting the privacy of the very young is especially important. For that reason, we adhere to the 1998 Children's Online Privacy Protection Act (COPPA). (For more information visit the Federal Trade Commission's COPPA site at http://www.ftc.gov/privacy/coppafaqs.shtm. The MGFA web-pages are not directed at children but recognize children may, at times, utilize the service of the web-pages in sending personal information to the MGFA National Office. Whenever we receive such information or inquiries from those we actually know are under 13, we obtain parental consent before any personally identifiable information is collected, used or disclosed.

 

Choice/Opt-Out

Our site provides users the opportunity to opt-out of receiving communications from MGFA at the point where we request information about the visitor. The MGFA allows the following options for removing your information from our databases. Anyone opting out will not receive future communications from us.

  1. Send an email to mgfa@myasthenia.org
  2. Send mail to the following postal address:
    Myasthenia Gravis Foundation of America
    355 Lexington Avenue, 15th Floor 
    New York, NY 10017 
     

Links to Other Sites

Our web site has links to many other sites. Once you link to another site, you are subject to the privacy policy of the new site. This includes the sites that you may link to through our search engine.

 

Security

Online registration and information such as credit card numbers will be secured using a commercially accepted method of encryption. However, while we employ reasonable security measures to protect your personal information, please be aware that no method of electronic transmission is completely infallible, and we cannot guarantee its absolute safety. If you become aware of any breach of Site security, please contact us immediately.

 

We may disclose personally identifiable information to the proper authorities if we become subject to a subpoena or court order, or if we are otherwise legally required to disclose such information. We also may use and disclose information about you to establish or exercise our legal rights, to enforce the Terms and Conditions of Use, to assert and defend against legal claims, or if we believe such disclosure is necessary to investigate, prevent, or take other action regarding actual or suspected illegal or fraudulent activities or potential threats to the physical safety or well-being of any person. If all or part of MGFA is merged or otherwise transferred to another entity, we may transfer the personally identifiable information you provided to us to such entity as part of that transaction.

 

Questions About Our Privacy Policy

If you have any questions about the Myasthenia Gravis Foundation of America's privacy policy, please feel free to contact us at:

Myasthenia Gravis Foundation of America
355 Lexington Avenue, 15th Floor 
New York, NY 10017 

Telephone: 800-541-5454

Fax: 212-297-2158

Email: mgfa@myasthenia.org

A World Without MG