Since our inception in 1952, we have led the charge to support the most promising scientific endeavors—funding research, engaging young scientists and clinicians, and spearheading a comprehensive patient registry. At our national meetings and international symposiums, we bring together the brightest minds in the field of myasthenia gravis.
Research has led to significant improvements in diagnostic techniques, treatments and therapies, and improved disease management. Fatality for MG used to be between 30 to 40%. Today, death from MG is rare—but still happens. Despite advances, today’s treatment options still come with significant side effects, and only partially address life-altering symptoms of MG. Some people with MG do not respond to any of the treatment options currently available. Our charge is clear; more work in this area is necessary to better understand MG, expand treatment options, and ultimately, find a cure.
We have entered into a very exciting time in MG research, with new treatment pathways on the horizon. The Food & Drug Administration (FDA) approved the first disease modifying therapy for MG in 2017, and several potential new treatments are being explored in clinical trials. People with MG have every reason to be hopeful - new treatment choices will become a reality in the next few years.
To learn more about the latest in research development, please see here.
Understanding Clinical Trials
A clinical trial is a research program conducted with patients to evaluate a new medical treatment, drug or device. The purpose of a clinical trial is to find new and improved methods for screening, preventing, diagnosing and treating diseases. While research conducted to-date has helped us understand more about myasthenia gravis, there is still much more to learn. As part of our goal to support the discovery of new treatments, evaluate their efficacy and to learn about the full impact of MG on someone’s life, we recognize and support the importance of promising research and clinical trials.
To learn more about what is in the research pipeline for MG treatments, see our Clinical Trials page.