2024 Rare Disease Week on Capitol Hill
Siobhain Carolan, who lives with congenital myasthenic syndrome,
discusses her experiences advocating for those with rare diseases at 2024 Rare Disease Week
on the Hill.
Author: Siobhain Carolan
My CMS Journey: How the Right Diagnosis Changed My Life and Led Me to Advocacy
Siobhain shares how living with congenital myasthenic syndrome
helped her become a fierce advocate for those with rare diseases.