These podcast episodes, featuring members of the MGFA community, will inform, inspire, and support your understanding of the myasthenia gravis experience. Give them a listen today.
MGFA “Our MG Voices”
“12-Year-Old Myasthenia Researcher Elizabeth Madole Making Her Rare Disease Research Dreams Come True”
As a preteen, Elizabeth Madole was already a published scholar. Hear how this young researcher’s experience with MG led to a case study that could improve care for others needing breathing support. Elizabeth and her research collaborator Dr. Alex Fay will present their findings at the 2026 MGFA Scientific Session.
LISTEN: https://open.spotify.com/episode/2GvcSz92mP8Wu1qLsBXqgO
NeurologyLive Mind Moments
“The Clinical Reality of Seronegative Myasthenia Gravis”
In this episode, Sarah Hoffmann, MD, PhD, senior neurologist at Charité – University Medicine Berlin, provides clinical insight into the evolving and often challenging landscape of seronegative myasthenia gravis. Dr. Hoffman is an MGFA grant award recipient and keynote speaker at the 2026 MGFA Scientific Session.
LISTEN: https://open.spotify.com/episode/0iFUBYHJbiXy4fEiwsFq8p
The State of the Patient
“The Person Behind the Patient”
Hosted by the nonprofit advocacy organization Patients Rising, this podcast explores lived experience with the U.S. healthcare system. This episode features Greg Josephs, MGFA Ambassador for Advocacy and Policy, who has lived with MG for over 20 years.
LISTEN: https://www.youtube.com/watch?v=ILdI0vkS8TY
Untold Stories: Life With a Severe Autoimmune Condition
“Prioritizing Care: Confronting Postpartum with MG”
MGFA volunteer Nicole’s life took an unexpected turn when she was diagnosed with MG. As a new mother, she battled both the disease and postpartum depression. Her thoughtful insights in this episode give the listener an appreciation for the resiliency and adaptability required to navigate unforeseen health challenges.
Brain Health Podcast
“Recovery through rhythm: Jazz musician John Stein’s myasthenia gravis journey”
Jazz musician John Stein talks about the symptoms that led to his hospitalization and MG diagnosis, as well as his rehab journey after hospitalization. MGFA Partner in MG Care Dr. Carolina Barnett-Tapia also explains how MG may present differently in each person and important considerations for caregivers when someone is newly diagnosed with the condition.
