Whether virtual, in-person or in a hybrid model, we invite patients and caregivers to our MGFA-sanctioned support groups to learn more about managing MG and to receive caring support. In addition to groups organized by location or type (in person / virtual), MGFA offers the following virtual specialty support groups:
- Seronegative Myasthenia Gravis
- MAYA (Myasthenia Advocacy for Young Adults)
- Junta en Español (Spanish Language)
- Caregivers
- Pediatric (Children and Teens) – please use this form to register
Upcoming MGFA Support Group meetings are listed BELOW or SEARCH by state, region, dates, or type. Have questions? Reach out to us at mgfa@myasthenia.org. You can also reach out to any support group leader; contact emails are provided for each group.
WANT TO VOLUNTEER TO RUN A SUPPORT GROUP?
If you are interested in helping run a support group or starting a new one, fill out the Support Group Leader Volunteer form.
Volunteer with a Support Group
OPINION DISCLAIMER
The views and opinions communicated at, or related to, any MGFA support group meeting, are those of the author(s). MGFA is not responsible for the author’s views and opinions and, unless expressly indicated, nothing shared at, or related to, the MGFA support group meetings are meant to reflect the official views, opinions, policies, or positions of MGFA. Further, nothing communicated at, or related to, any MGFA support group meeting is intended to harm any protected group, organization, entity, or individual.
Northeast Wisconsin Myasthenia Gravis Support Group
Northeast Wisconsin Myasthenia Gravis Support Group meets on the second Thursday of each month (Sept-June) at 6:00pm.
The support group meets at Alleluia Lutheran Church 6725 Elmro Rd, Greenleaf, WI 54126
Contact: Niki Grossheim at new4mg@gmail.com 920-841-9988 https://mgwisconsin.org
Portland,Seattle, and Greater PNW MG Patients and Caregivers Group
Thursday, July 18, 6:00 pm on Zoom
Alexandria Harrold from UCB will join us to talk about one of their latest gMG treatments, Rystiggo. As always, there will be time to check in with everyone.
(email pnwmgsg@gmail.com for log on details)
Bethesda,Md Support Group
The Bethesda, MD, Support Group meets the third Saturday of the month from 10:00AM to 12:00PM Eastern Time via Zoom. Meetings are: Sept. 21; Oct. 19; Nov. 16; Dec. 21, 2024; Jan. 18, 2025; Feb. 15, Mar. 15 at 10:00AM.
For Information contact: Alan Sinclair, Bethesda Support Group Leader: 301-474-7745 or alsin6206@verizon.net
Both the Bethesda, MD, MG Support Group and our sister group, the Glen Burnie, MD, Support Group are meetings of persons with MG, MG caregivers, and any person who wants to know more about MG to discuss treatments, medications, how we’re coping with MG, etc., via ZOOM. Eventually the Bethesda Group hopes to be able to return to in-person meetings at Suburban Hospital in Bethesda as well as continuing ZOOM meetings. Our meetings on ZOOM and when in-person are very informal. I usually send the meeting ZOOM link information the weekend before the meeting. We try to carry a positive emphasis about our common disability. Anyone is welcome at both meetings.
Virginia Blue Ridge-Roanoke
Meets on Zoom.
Our meetings are on the 3rd Tuesdays of the month,
Odd months afternoons, Even months in the evenings.
Mar 19, 2024 01:00 PM
Apr 16, 2024 07:00 PM
May 21, 2024 01:00 PM
Jun 18, 2024 07:00 PM
Jul 16, 2024 01:00 PM
Aug 20, 2024 07:00 PM
Sep 17, 2024 01:00 PM
Oct 15, 2024 07:00 PM
Nov 19, 2024 01:00 PM
Dec 17, 2024 07:00 PM
If you have a smart phone, tablet, or computer with camera & microphone you can join us.
You can also connect on any phone by dialing in. Call Tom Powers & he can coach you through it.
Join Zoom Meeting
https://us02web.zoom.us/j/83648352567?pwd=NmswL3RKSUhwQWUzSStmZ3pFUzNhQT09
Meeting ID: 836 4835 2567
Passcode: roamg
Dial by your location
Instructions for Dial-Up You need unlimited long distance service.
- 1. Dial 1 301 715 8592 US2. Enter Meeting ID: 836 4835 2567 Press #
- 4. Enter Passcode: 707243 Press #
- 5. Wait for Meeting Host to admit you.
Added notes for Dial-Up * 6 turns on and off mute, * 9 “Raises your Hand” – to get our attention.<
Caregiver Support Group
MEETING IS ON HOLD FOR NOW. PLEASE CHECK BACK FOR UPDATES
IF YOU HAVE ANY QUESTIONS, PLEASE EMAIL MGFA@MYASTHENIA,ORG
Meets the Third Wedenesday of the month, 9:00 pm Eastern Time via Zoom.
Register in advance for this meeting here. After registering, you will receive a confirmation email containing information about joining the meeting.
For questions, please contact Toni Gitles at tinigitles@gmail.com
Phoenix Support Group
Meets via Zoom the 4th Tuesday of the month at 5:00PM AZ time
Join Zoom Meeting
https://us06web.zoom.us/j/84898334847?pwd=4i606qRHuNIWAQbfghtoIJM0LAMKwV.1
Meeting ID: 848 9833 4847
Passcode: 708893
Glen Burnie,MD Support Group
The Glen Burnie, MD, Support Group meets the first Saturday of the month from 10:00AM to 13:00PM Eastern Time via Zoom. The Meetings are: Sept. 07; Oct. 05; Nov. 02; Dec. 07, 2024; Jan. 04, 2025; Feb. 01; Mar. 01 at 10:00AM. The Glen Burnie Group does not meet if the 1st Saturday of the month is a Federal holiday weekend.
For Information contact: Butch Jones, Glen Burnie Support Group Co-Leader: butchserves@gmail.com or Marika Bates, Glen Burnie Support Group Co-Leader: marika.bates@gmail.com
Both the Bethesda, MD, MG Support Group and our sister group, the Glen Burnie, MD, Support Group are meetings of persons with MG, MG caregivers, and any person who wants to know more about MG to discuss treatments, medications, how we’re coping with MG, etc., via ZOOM. Eventually the Bethesda Group hopes to be able to return to in-person meetings at Suburban Hospital in Bethesda as well as continuing ZOOM meetings. Our meetings on ZOOM and when in-person are very informal. I usually send the meeting ZOOM link information the weekend before the meeting. We try to carry a positive emphasis about our common disability. Anyone is welcome at both meetings.
MG RGV Support Group Meeting (Rio Grande Valley)
MG RGV Support Group Meeting Information:
First Saturday of each month at 10:00 a.m. in Knapp Medical Conference Building, 1401 E 8th St., Weslaco, TX, Conference Room #1
For questions, please contact Karen Mau at maubillkaren@live.com or Phone 956-254-3510
Hampton Roads MG Support Group
**NEW – Support Group**
Meetings will be held in person on the first Saturday of each month, at 11 am at
Careplex Hospital in Hampton, Virginia (3000 Coliseum Drive)
There will also be virtual meetings held the second Monday of each month, at noon (please see other listing)
For more info, please contact Greg Josephs greg.josephs2@gmail.com or David Aguilar ramblon007@cox.net
Iowa Support Group
Support group meeting is every other month on the second Saturday at 10:00 am.
Ankeny Kirkendall Public Library, 1250 SW District Drive, Ankeny, Iowa 50023
For more info, please contact Katie Coffman at myastheniagravis.iowa@gmail.com