The Vitaccess Real MG Registry, sponsored by Vitaccess and in collaboration with the MGFA, is now available for current and new registry members. This registry helps researchers better understand MG through data contributed by those who live with the disease.
If you are diagnosed with myasthenia gravis, consider joining this registry and contributing to our body of knowledge around MG.
What is a patient registry?
MoreLearn more about the Vitaccess Real MG Registry
MoreSign up for the registry
More
What is a patient registry?
A patient registry is a collection of information about people diagnosed with a specific disease – in this case, myasthenia gravis.
Researchers use these data to understand the clinical course of MG in patients and to understand what factors or interventions may improve outcomes. The data can also be used to improve the design of clinical trials and streamline the execution of these trials.
Registry contributions help the entire MG Community. Without the contributions of your data, we would be further away from new treatments or MG discoveries.
About the Vitaccess Real MG Registry
MGFA has partnered with Vitaccess, a technology and real-world data company, to make it easy and efficient for those living with MG to contribute health data as part of a powerful, global registry platform.
Patients can access the registry from any device, sharing their health data frequently through short surveys. This allows you to share more timely information about your day-to-day experience with MG.
Secure data management and patient privacy is our top priority. All registry data are protected and anonymized in this secure, HIPAA and GDPR-compliant platform. The data you and others contribute is confidential, protected, aggregated, and anonymized to ensure that researchers cannot access individual patients’ data and health information. More information about the Vitaccess Real MG Registry is available on the Vitaccess website.
