Writing about your experiences with myasthenia gravis can be a cathartic way of sharing your story and showing others that they’re not alone. Some members of our community have written memoirs or other books about MG, and you can find a selection of them here.
Contact Michael Antonellis if you have a book to share.
Title & Author
Where to buy
I Was Fine a Minute Ago: My First Three Months with Myasthenia Gravis
Ron Fredman
When Ron Fredman was diagnosed with MG, he wanted to cry, but instead he chose to laugh. “When I laugh, it doesn’t take away the pain – but it does help.” Read Ron’s hilarious tales about his first three months after diagnosis in this eBook, “I Was Fine a Minute Ago,” published by the MGFA.
21 Mistakes Caregivers Make & How to Avoid Them: Solutions and Strategies to Reduce Stress and Increase Happiness
Toni Claire Gitles
MG patient and caregiving expert Toni Gitles explores common pitfalls that caregivers make and offers solutions and strategies that will save the family caregiver time, energy, and heartache. You will learn about principles and practices that will transform the caregiving journey into an experience of connection, confidence, and discovery.
Invisible Illness
Michele Lee Niec
Written for employees, human resources, and workplace leaders, A Leadership Guide to Normalizing the Discussion of Invisible Illness in the Workplace, is a useful reference guide defining invisible disability and offering the first steps to open discussions to bring awareness, to educate, to seek assistance, and most importantly, to not feel as though employees are hiding or being dishonest.
As For Life
Marilyn McVicker
I must warn the reader that my writing is not intended to be uplifting or inspirational. For every moment or emotion I have captured on paper, there are other experiences, just as strong, but opposite. I offer these poems to you, and hope you glean some satisfaction from knowing that even in illness, there is life, love, even with exquisite suffering there is exuberance and abundance.
Coping with Myasthenia Gravis
Aziz Shaibani
The idea of the book was inspired by the need of the myasthenia gravis patients to learn from each other, strategies to cope of this disease and to concur difficulties associated with it and its treatment. Some coping mechanisms were discovered by patients after long suffering and therefore are precious. These information is not present in the medical textbooks and only patients can speak about their experiences.
All proceeds from the sale of this book go to
the Myasthenia Gravis Foundation of America.
Fantastic Things
Elyse Bruce
Missy Barrett loves her brothers, Aaron and Josh. She loves them both so much that there isn’t anything she wouldn’t do for them. Josh has a rare health condition called Myasthenia Gravis, and Missy thinks it’s about time she asked Josh some important questions about what that is. After all, brothers and sisters are supposed to help each other out, and knowing what to do when Josh needs help matters.