"Little by little, I learned to listen to myself, recognize my limits, and understand that asking for help is not a sign of weakness but an act of courage."
At just 12 years old, Elizabeth Madole is already helping shape the future of myasthenia gravis care. She lives with AChR antibody–positive generalized MG, a rare autoimmune disease that causes muscle weakness and can affect breathing, swallowing, and mobility. From a young age, her symptoms were severe, including life-threatening episodes. She has experienced what many […]
As a child in Iran, Dr. Fatemeh Khani Habibabadi was always
interested in the world around her. Now her research in autoimmune neurological
disorders is making a difference for people with MG.
Samm brings more than two decades of nonprofit experience, serving in executive leadership roles for healthcare nonprofits such as March of Dimes, National Brain Tumor Society, and the American Liver Foundation. She has an extensive background in organizational management, strategic planning, board and volunteer development, and revenue generation that results in growth and impact. As MGFA’s senior executive, Samm is responsible for providing the vision and strategy to fulfill the work identified in the organization’s strategic plan, support the MGFA’s vision and mission, and ensure that both the operational and board structures support this work.