Research Webinar Series: The Power of Medical Records in MG Research
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MGFA events serve to bring all of us across the MG Community together – whether online or in person. We are proud to offer conferences, seminars, and wellness and research webinars as well as fundraising events such as our MG Walks. We hope you will use this handy MGFA Events Finder List & Calendar to see upcoming or past events, and search for events that mean the most to you.


To view upcoming events, scroll down to see the events list or use the calendar on this page and click/tap on colored circle dates. You can also search for an event by typing the event name in the search bar. To view past events, type the name of the event in the search bar or click/tap the left arrow in the calendar. If you have questions, feel free to contact Dova Levin at

Research Webinar Series: The Power of Medical Records in MG Research

By Nick Patrone
Event date: 4/11/2023 3:00 PM Export event

The Power of Medical Records in MG Research

Presented by Ashanthi De Silva

April 11, 2023 @ 3PM Eastern, 12PM Pacific

PicnicHealth is a real-world data research health tech company committed to accelerating research in rare and chronic conditions. Their observational study in myasthenia gravis (MG) examines de-identified medical record information to help researchers get a holistic picture of the real impact of MG and find answers that can’t be found in clinical trials alone. If you are living with or caring for someone with myasthenia gravis (MG) and are looking to get involved in MG research from home, join us April 11! 

During the webinar, Ashanthi De Silva, Community Partnerships Manager at PicnicHealth, will talk about how contributing de-identified medical records can advance MG research, and how PicnicHealth’s innovative digital tool helps keep all your medical records and imaging at your fingertips, allowing you to share it with whomever you’d like. There will be a Q&A session, so please come prepared to ask your questions. 


To learn more about PicnicHealth’s MG study, visit 

Ashanthi De Silva is a professional patient advocate who is passionate about collaborating with underrepresented communities in health care and research, and uses her strategic communications and health expertise to empower and engage patient voices in the rare disease space. She currently works for PicnicHealth, a real-world data research organization connecting rare and chronic disease communities with accessible opportunities in research.

Please register for the webinar using the form below.


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