• Set Text Size  
       

Get Involved

Wondering how you can get more involved to help and support the MG Community? We have so many opportunities for you to dive right in! MGFA offers many fun ways to volunteer and get involved to support us in our quest for A World Without MG. 

 

Volunteers are the heart and hands of the Myasthenia Gravis Foundation of America. We are currently seeking uniquely qualified volunteers, who are empowered by their experience with MG and can join us in bringing awareness, educational programming and support to local MG communities across the country. We seek volunteers in with a wide array of expertise, ranging from social media, to healthcare to fundraising.

VOLUNTEER TODAY by COMPLETING this ONLINE FORM.

 

VOLUNTEER TODAY

 

Check out the Links to the Right or Read more details on the page below.

 

Become an MG Friend

If you are a person living with MG, or a caregiver of someone with an MG diagnosis, and can provide practical advice, an understanding ear, and emotional support, consider becoming an MG Friend! Our MG Friends volunteers are men and women of different ages and experiences with both life and with MG. Volunteers have at least two years of experience living with MG (either as a person diagnosed with the disease or a family member). Demonstrate empathy and a sincere desire to help others.

 

Through phone and email communication, an MG Friend provides confidential conversations, active and reflective listening, techniques to overcome day-to-day challenges, local resources as well as information and answers to FAQs. To become an MG Friend, you will be scheduled for a 30-minute interview. You must meet the requirements and satisfactorily complete the MG Friend two-hour online training course. COMPLETE THIS FORM if you are interested. You can also contact Genna Mvalo at gmvalo@myasthenia.org. Learn more about MG Friends HERE

 

Support Group Leaders and Co-Leaders

Are you interested in forming an in-person or virtual Support Group in the MG Community? The MGFA has resources and training to help you get started! Our Leaders and Co-Leaders are trained volunteers who organize and give structure to meetings that take place with those living with MG and their families. Leaders establish and run Support Groups by coordinating meeting spaces, guest speakers and local promotion. Leaders receive facilitator training, to ensure members feel welcomed, the atmosphere is friendly and that everyone has an opportunity to speak.

 

Don’t have a Support Group in your area? Our Support Group Calendar is home to existing and forming groups across the country. Don’t see your city or state listed? Consider forming a group. You will receive a Support Group Leader's Manual, training and support from the MGFA in getting your group off the ground and keeping it going. You can contact Dova Levin at dlevin@myasthenia.org or Volunteer Today!

 

MG Patient Advocacy: Making Our Combined Voices Heard

The MG Community faces challenges that impact how we live our lives with myasthenia. In order to overcome those challenges, we must come together and make sure our voices are heard clearly at all levels of government, across the medical and insurance communities, and around the world.

 

Our MG Voice is the MGFA’s ongoing MG patient advocacy program that puts the future of our community in your hands. The call to action? We ask you to step up and engage in activity that could make a huge difference in people’s lives. We do so much to help drive action and results that can help our community including writing to Congress to ensure patient rights, submitting proclamations, creating advocacy alerts to influence stakeholders, and driving MG Awareness around the world. LEARN MORE ABOUT OUR MG VOICE advocacy program HERE. Or to become part of this national advocacy team, Complete this Volunteer Form or reach out to Genna Mvalo at the MGFA – gmvalo@myasthenia.org.

 

Fundraising and Join Our Giving Circles

 

Your fundraising changes the world for people affected by MG by driving research to find the cause, better treatments and eventually a cure for MG. Your fundraising ensures people can easily access the information they need to live with MG and connects them with each other to learn, share and cope. YOU can be a fundraising powerhouse –Join or create a fundraising campaign today to raise money and increase awareness to help create a world without MG.

 

You can also be part of our MGFA GIVING CIRCLES to obtain special recognition and access to research updates and MG experts as well as valuable incentives. Learn about ALL OUR FUNDRAISING OPPORTUNITIES and support MGFA today!

 

Community Events and Do It Yourself Fundraising

Both Community Events and Do It Yourself Community Initiatives are carried out by people LIKE YOU in local regional areas that raise funds for MGFA independent of our staff-driven walk or golf events. A Community Event is when an MGFA Volunteer Leader decides to take on the logistics and planning of a tangible event to benefit MGFA, such as planning a softball tournament, a dinner party or small walk just to name a few. A Community Initiative is when an MGFA Volunteer Leader initiates any other fundraising opportunity in their community such as asking a local restaurant to donate a percentage of each check to MGFA, asking for donations in lieu of birthday or holiday gifts which make great Facebook fundraisers!

 

Step up, plan your event, and fundraise today. Learn more about Do It Yourself Events and COMPLETE THIS VOLUNTEER FORM or reach out to Caroline Gayler at cgayler@myasthenia.org today.

 

Join the MG Walks

Volunteering for the MG Walk is a wonderful way to come together and support the mission of the Myasthenia Gravis Foundation of America. We have a variety of opportunities to meet your skills and interests, either as part of the local walk committee or on the day of the event.  We also have opportunities for groups, such as school or church groups. As a volunteer, you can make an impact and be MG STRONG. To become an MG Walk Volunteer, PLEASE VISIT AND COMPLETE THIS FORM.

 

For more information, please visit http://www.MGWalk.org or contact the MG Walk team at 1-855-MGWalks (649-2557)

 

MGFA Birthday Club

 

Everyone has a birthday. So, for your next one, start your own birthday fundraiser. We make it easy for you. Visit our Birthday Club webpage HERE to get started.

 

National Events, Webinars, and Speaking Opportunities

 

Participate in or become a speaker and presenter for one of our many MGFA EVENTS or WEBINARS throughout the year. Speak about your expertise, experiences, and opinions about myasthenia and living the patient experience. COMPLETE THIS VOLUNTEER FORM and MGFA Will contact you.

 

Get Your MGFA Wearables

 

MGFA has opened up its very first online store with branded items such as face coverings and a long sleeve shirt. More to come, but be the first one in your neighborhood to purchase an MGFA wearable. Check out the Online store and buy your MGFA Stuff HERE

 

MG Awareness Month is in June

 

June is MG Awareness month around the world, and in 2021 we Took Action and created awareness and understanding of the challenges and opportunities faced by everyone in the MG Community. This year, we "changed" the theme to MG Action Month – Turning Awareness into Action - and offered specific calls to action for the MG Community and beyond to find creative ways to show that WE ARE MUCH MORE THAN OUR MG. Check out the many ways YOU CAN DRIVE AWARENESS OF MG.

 

Volunteer Awards & Recognitions

 

Volunteers are the heart of MGFA, and each year we recognize phenomenal leaders who have made significant impact in the MG community.

2019 Volunteer of the Year: Alexis Rodriguez

2018 Volunteer of the Year: Rebecca Molitoris

2017 Volunteer of the Year: Susan Klinger

2016 Volunteer of the Year: Janet Myder

 

A World Without MG