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Make an Impact

Wondering how you can get more involved to help and support the MG Community? We have so many opportunities for you to dive right in! MGFA offers many fun ways to volunteer and get involved to support us in our quest for A World Without MG. 

 

Volunteers are the heart and hands of the Myasthenia Gravis Foundation of America. We are currently seeking uniquely qualified volunteers, who are empowered by their experience with MG and can join us in bringing awareness, educational programming and support to local MG communities across the country. We seek volunteers in with a wide array of expertise, ranging from social media, to healthcare to fundraising.

VOLUNTEER TODAY by COMPLETING this ONLINE FORM.

 

VOLUNTEER TODAY

 

Check out the Links to the Right or Read more details on the page below.

 

Become an MG Friend

If you are a person living with MG, or a caregiver of someone with an MG diagnosis, and can provide practical advice, an understanding ear, and emotional support, consider becoming an MG Friend! Our MG Friends volunteers are men and women of different ages and experiences with both life and with MG. Volunteers have at least two years of experience living with MG (either as a person diagnosed with the disease or a family member). Demonstrate empathy and a sincere desire to help others.

 

Through phone and email communication, an MG Friend provides confidential conversations, active and reflective listening, techniques to overcome day-to-day challenges, local resources as well as information and answers to FAQs. To become an MG Friend, you will be scheduled for a 30-minute interview. You must meet the requirements and satisfactorily complete the MG Friend two-hour online training course. COMPLETE THIS FORM if you are interested. You can also contact Genna Mvalo at gmvalo@myasthenia.org. Learn more about MG Friends HERE

 

Support Group Leaders and Co-Leaders

Are you interested in forming an in-person or virtual Support Group in the MG Community? The MGFA has resources and training to help you get started! Our Leaders and Co-Leaders are trained volunteers who organize and give structure to meetings that take place with those living with MG and their families. Leaders establish and run Support Groups by coordinating meeting spaces, guest speakers and local promotion. Leaders receive facilitator training, to ensure members feel welcomed, the atmosphere is friendly and that everyone has an opportunity to speak.

 

Don’t have a Support Group in your area? Our Support Group Calendar is home to existing and forming groups across the country. Don’t see your city or state listed? Consider forming a group. You will receive a Support Group Leader's Manual, training and support from the MGFA in getting your group off the ground and keeping it going. You can contact Dova Levin at dlevin@myasthenia.org or Volunteer Today!

 

MG Patient Advocacy: Making Our Combined Voices Heard

The MG Community faces challenges that impact how we live our lives with myasthenia. In order to overcome those challenges, we must come together and make sure our voices are heard clearly at all levels of government, across the medical and insurance communities, and around the world.

 

Our MG Voice is the MGFA’s ongoing MG patient advocacy program that puts the future of our community in your hands. The call to action? We ask you to step up and engage in activity that could make a huge difference in people’s lives. We do so much to help drive action and results that can help our community including writing to Congress to ensure patient rights, submitting proclamations, creating advocacy alerts to influence stakeholders, and driving MG Awareness around the world. LEARN MORE ABOUT OUR MG VOICE advocacy program HERE. Or to become part of this national advocacy team, Complete this Volunteer Form or reach out to Genna Mvalo at the MGFA – gmvalo@myasthenia.org.

 

 

 

A World Without MG