Writing about your experiences with myasthenia gravis can be a cathartic way of sharing your story and showing others that they’re not alone. Some members of our community have written memoirs or other books about MG and have asked us to share them here.
Contact Michael Antonellis at mantonellis@myasthenia.org if you have a book to share.
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Title & Author |
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Invisible Illness
Michele Lee Niec
Written for employees, human resources, and workplace leaders, A Leadership Guide to Normalizing the Discussion of Invisible Illness in the Workplace, is a useful reference guide defining invisible disability and offering the first steps to open discussions to bring awareness, to educate, to seek assistance, and most importantly, to not feel as though employees are hiding or being dishonest.
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Amazon |
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As For Life
Marilyn McVicker
I must warn the reader that my writing is not intended to be uplifting or inspirational. For every moment or emotion I have captured on paper, there are other experiences, just as strong, but opposite. I offer these poems to you, and hope you glean some satisfaction from knowing that even in illness, there is life, love, even with exquisite suffering there is exuberance and abundance.
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Amazon |
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Coping with Myasthenia Gravis
Aziz Shaibani
The idea of the book was inspired by the need of the myasthenia gravis patients to learn from each other, strategies to cope of this disease and to concur difficulties associated with it and its treatment. Some coping mechanisms were discovered by patients after long suffering and therefore are precious. These information is not present in the medical textbooks and only patients can speak about their experiences.
All proceeds from the sale of this book go to
the Myasthenia Gravis Foundation of America.
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Amazon |
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Fantastic Things
Elyse Bruce
Missy Barrett loves her brothers, Aaron and Josh. She loves them both so much that there isn't anything she wouldn't do for them. Josh has a rare health condition called Myasthenia Gravis, and Missy thinks it's about time she asked Josh some important questions about what that is. After all, brothers and sisters are supposed to help each other out, and knowing what to do when Josh needs help matters.
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Amazon US
Amazon Canada |
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