Latest Post
Snowflakes: My MG Story
I was 29 when I learned of Onassis’ death and first heard the words “myasthenia gravis.” Little did I suspect that 45 years later, those words would become a large part of my vocabulary…
LATEST FROM THE MGFA INSIDER BLOG
An Inspirational Myasthenia Hero for So Many in the MG Community
Lenora “Lynn” Waltz was an
amazing advocate for the myasthenia community, with an inspiring story that touched so many
people.
How to be Prepared for an MG Emergency
An MG patient offers pragmatic and truly critical advice about
preparing for an MG emergency BEFORE it happens.
Two Myasthenia Patients Proudly Rolled Up Their Sleeves for COVID-19 Vaccination
MG patients and nurses share unique experiences contracting COVID-19
and obtaining the vaccine.
MG Superwoman, Taking It One Day at a Time
MG “Superwoman” Paula McGinnis steps up
to plan community events in Hawaii and Metropolis
Golfing for Good
Jeff Abramson’s wife Patti had myasthenia, and when
she left this world, Jeff planned a golf event in her honor. Little did he know how much he
would impact the MG Community.
Resiliency and Hope: My MG Story
Rosemarie D’Alessandro overcame her myasthenia to
become an inspiring advocate for child safety after the murder of her
daughter.
MGFA Pilot Grant Awards Announced for 2020
MGFA is pleased to award research grants each year to help advance
the understanding of myasthenia gravis. Congratulations to the amazingly creative medical
professionals and researchers who earned the 2020 funding grants.
MGFA PILOT GRANT AWARDS ANNOUNCED FOR 2020
Grant funding announced in myasthenia gravis research
Managing Life with Multiple Medical Conditions
Life with MG can be challenging; from managing symptoms to multiple
medications to worrying about potential worsening. However, we know that these challenges
are amplified further when people are managing other conditions in addition to their MG.
People with MG that have other medical conditions often require treatment by health care
providers who are not experts in MG.
Jessica Collier is an MG Mermaid…and an Inspiration
Jessica Collier began feeling the symptoms of Myasthenia Gravis back
in 1997. She was officially diagnosed in 1998. But, she never let the disease impact her
incredibly positive attitude and drive to do good for the community. She took an extremely
creative path to drive awareness of the disease by creating “Mermaid
Mondays” during MG Awareness Month every year.