These podcast episodes, featuring members of the MGFA community, will inform, inspire, and support your understanding of the myasthenia gravis experience. Give them a listen today.
MGFA is pleased to award research grants each year to help advance
the understanding of myasthenia gravis. Congratulations to the amazingly creative medical
professionals and researchers who earned the 2020 funding grants.
Life with MG can be challenging; from managing symptoms to multiple
medications to worrying about potential worsening. However, we know that these challenges
are amplified further when people are managing other conditions in addition to their MG.
People with MG that have other medical conditions often require treatment by health care
providers who are not experts in MG.
Jessica Collier began feeling the symptoms of Myasthenia Gravis back
in 1997. She was officially diagnosed in 1998. But, she never let the disease impact her
incredibly positive attitude and drive to do good for the community. She took an extremely
creative path to drive awareness of the disease by creating “Mermaid
Mondays” during MG Awareness Month every year.
Ronni Merrill Faust is a cabaret singer and dedicated supporter of
MGFA since her husband was diagnosed with myasthenia gravis six years ago. Ronni talked to
the MGFA staff in the July 2020 MGFA News enewsletter.
Samm brings more than two decades of nonprofit experience, serving in executive leadership roles for healthcare nonprofits such as March of Dimes, National Brain Tumor Society, and the American Liver Foundation. She has an extensive background in organizational management, strategic planning, board and volunteer development, and revenue generation that results in growth and impact. As MGFA’s senior executive, Samm is responsible for providing the vision and strategy to fulfill the work identified in the organization’s strategic plan, support the MGFA’s vision and mission, and ensure that both the operational and board structures support this work.