Latest Post
Snowflakes: My MG Story
I was 29 when I learned of Onassis’ death and first heard the words “myasthenia gravis.” Little did I suspect that 45 years later, those words would become a large part of my vocabulary…
LATEST FROM THE MGFA INSIDER BLOG
Spotlight on the MG Community: Paul Strumph
Learn more about a key member of our volunteer Board of
Directors.
Why the MG Walk Matters to Me
It's more important than ever to restart the MG Walk.
We’re closer than ever to a world without MG. But to get there, we need
you.
Running the Denver Colfax Marathon for a World Without Myasthenia Gravis
“We want to find a way to give back to an organization
that’s been tremendously helpful to
us.”
I Was Fine a Minute Ago: My First Year with Myasthenia Gravis
Read an excerpt from this new ebook, full of humorous and honest
tales about life with myasthenia gravis.
Webinar Recap: Is It Safe to Exercise with Myasthenia Gravis?
Sarah Wright, DO MS, joined us on March 20 to discuss a hot topic in
the MG Community
The “Rocky of Rap Media” Takes on MG
Here I was in my early twenties, my work was getting known all over
the world, but I was secretly battling a potentially life-threatening
disease
2024 Rare Disease Week on Capitol Hill
Siobhain Carolan, who lives with congenital myasthenic syndrome,
discusses her experiences advocating for those with rare diseases at 2024 Rare Disease Week
on the Hill.
My CMS Journey: How the Right Diagnosis Changed My Life and Led Me to Advocacy
Siobhain shares how living with congenital myasthenic syndrome
helped her become a fierce advocate for those with rare diseases.
Making the Most of Your Doctor Appointments
Dr. Heather Finlay-Morreale, a medical doctor who lives with MG,
shares tips for preparing for your doctor’s appointment and making the most of
the time you have with your provider.