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Latest Post

Finding Strength in the Journey: Valerie’s Myasthenia Gravis Story

Valerie Schaffer | June 5, 2025
At first, Valerie drew inward when she was diagnosed with MG. Now, seven years later, she is ready to speak about her story to raise awareness and help others living with the disease find hope.
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LATEST FROM THE MGFA INSIDER BLOG

Rare Disease Week: Highlighting Seronegative MG, a “Rare-of-the-Rare” Disease
Our MG Voice Advocacy

Rare Disease Week: Highlighting Seronegative MG, a “Rare-of-the-Rare” Disease

Kate Stober | March 2, 2023
The struggle seronegative myasthenia gravis patients face for diagnosis and treatment.
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How to Be an Advocate for Yourself and Others with Myasthenia Gravis
Our MG Voice Advocacy

How to Be an Advocate for Yourself and Others with Myasthenia Gravis

Laura Chandler | February 28, 2023
Rare Disease Day happens once a year, but you can bring awareness to myasthenia gravis any day of the week!
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When Every Day is Rare Disease Day
Our MG Voice Advocacy

When Every Day is Rare Disease Day

Meridith O’Connor | February 25, 2023
Illuminating the support rare disease patients need 365 days of the year.
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Rare Disease Week – Advocacy at Home and on the Hill
Our MG Voice Advocacy

Rare Disease Week – Advocacy at Home and on the Hill

Laura Chandler | February 23, 2023
Rare Disease Week starts on February 28. Learn how you can advocate for people with MG.
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MG patients discuss finding community at the MGFA Patient Conference
Events

MG patients discuss finding community at the MGFA Patient Conference

Kate Stober | February 23, 2023
Hear from patients about why they are attending the MGFA National Patient Conference in 2023.
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Let’s Be Courageous, Together
Living with MG Stories

Let’s Be Courageous, Together

Caroline Gayler | December 14, 2022
Priscilla Forrester’s courageous effort to connect community members and volunteer   
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Thinking About the Mental Health of Those Impacted by COVID-19 – A Time to Begin
        Healing
Living with MG Stories

Thinking About the Mental Health of Those Impacted by COVID-19 – A Time to Begin Healing

Ruth Riley | November 29, 2022
Thinking about the impact of COVID on mental health as an MG patient.
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Can Car T-Cell Therapy Effectively Treat Myasthenia Gravis?
MG Research

Can Car T-Cell Therapy Effectively Treat Myasthenia Gravis?

Kate Stober | September 9, 2022
Danny DeBerry and his CAR T-Cell Therapy story.
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Managing MG: A Nurse’s Perspective
Living with MG Stories

Managing MG: A Nurse’s Perspective

Kate Stober | August 1, 2022
Melissa Edmonds offers a nurse’s perspective on managing MG.
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Novelist Helps Readers Understand Myasthenia Gravis
Living with MG Stories

Novelist Helps Readers Understand Myasthenia Gravis

Kate Stober | July 21, 2022
Elyse Bruce’s book “Fantastic Things” helps children relate to and understand myasthenia.
Read More

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