National Patient Conference

This annual event brings together members of the myasthenia gravis community, including individuals living with MG, care partners, family members, and leading MG experts. 

Join us for a wide range of sessions on MG research, treatment updates, and discussions designed to help you and your family better manage your MG journey. It’s a wonderful opportunity to learn about the latest in MG treatments and discoveries while connecting with others in the community. 

The 2026 MGFA National Patient Conference will be held April 12 – 14, 2026, in Hollywood, Florida, at the Margaritaville Hollywood Beach Resort. Registration opens in late 2025!

Consider volunteering some of your time to help us produce this fantastic event. Volunteer opportunities include greeting attendees, registration, event set up, supporting patients and caregivers, and more. We will work with you to help find the best opportunity while always considering your own well-being.

We will also have volunteer opportunities for those attending virtually. Please reach out if you are interested.

Fill out our Volunteer Connect form to be considered for a volunteer role.

Silhouette of cacti against a colorful sunset sky with mountains in the background. A white circle in the center contains the text ‘2025 MGFA National Patient Conference, Phoenix, AZ.’

Recordings from the 2025 conference are available for you to watch. See below!

Monday, March 31

MORNING SESSIONS
9:30 a.m. MSTWelcome Address
Samantha Masterson, MGFA President and CEO
9:45 a.m. MSTKeynote Address: Understanding the Disease Processes Driving the Subtypes of MG and Related Neuromuscular Junction Disorders
Kevin O’Connor, PhD, Yale School of Medicine
10:35 a.m. MSTDisease State and Treatment Options
Suraj Muley, MD, Director of Neurology, Bob Bove Neuroscience Institute & Professor of Neurology, University of Arizona School of Medicine
11:50 a.m. MSTTreatment Expectations in MG: The Changing Conversation
Jeffrey Rosenfeld, PhD, MD, Loma Linda University
AFTERNOON SESSIONS
1:40 p.m. MSTEmpowered Voices: Navigating Legislative Advocacy and Self Advocacy for Lasting Change
Melinda J. Burnworth, PharmD, NORD
2:25 p.m. MSTPanel Discussion: The Path for You Shared Decision Making
Moderated by Kelly Graham Gwathmey, MD, Associate Professor of Neurology, Virginia Commonwealth University
Featuring Janel Worcester-Brown and Randy Clough

Tuesday, April 1

MORNING SESSIONS
9:35 a.m. MSTUnexpected Gifts: Transform Your Challenges and Rewrite Your Story 
Vickie Petz Kasper, MD, Author, Podcast Host, and Diplomate of the American Board of Lifestyle Medicine and Obstetrics and Gynecology 
10:25 a.m. MST#AskPatients: How Patient Engagement Shapes the Future of Care 
Jen Horonjeff, PhD, CEO & Founder, Savvy Cooperative
Sponsored by Johnson & Johnson Innovative Medicine
11:45 a.m. MSTStrength in Motion: Safe and Effective Exercise for ​Myasthenia Gravis​
Sarah Wright, DO, MS, Pediatric Neurologist, Children’s National Hospital
AFTERNOON SESSION
1:50 p.m. MSTClosing Plenary: Together We Rise
David Jack, Motivational Speaker

2024 National Patient Conference

You can watch all the sessions, volunteer awards, and the keynote speech from the 2024 conference in Tampa.  View the 2024 National Patient Conference recap here.

Thank You to Our 2025 Event Sponsors

Presenting Partners

Alexion
Amgen
argenx
UCB
EMD Serono
Accredo
RemeGen