Betty Ajueyitsi
Betty Ajueyitsi, MGFA ambassador for education and virtual learning, was diagnosed with seronegative MG in 2011 and started her advocacy journey after her experience with the medical system. Originally from Nigeria, she is a schoolteacher who lives in Maryland with her family. Betty has been an active MGFA volunteer, including serving as lead volunteer for the Community Health Fair.
Kettia Alusma-Hibbert, DNP, APRN, MSN, FNP-BC, CNRN, CMRD
Kettia Alusma-Hibbert, DNP, APRN, MSN, FNP-BC, CNRN, CMRD, is a doctorally prepared, board-certified nurse practitioner with specialized certification as a neuroscience nurse. With over 16 years of experience in neurology care, she has dedicated her career to treating and managing patients across the continuum of care—from acute inpatient settings as a neuro-tele and neuro ICU nurse to her current role as a neuroscience nurse practitioner in an outpatient ambulatory setting.
Matt Bornstein
Matt Bornstein, MGFA ambassador for fundraising, is a native New Yorker who works in sales at a commercial lighting company. Diagnosed with MG in 2011, he began volunteering as an MG Friend in 2022. Matt also serves as the co-chair for the MG Walk New York. Volunteering enables him to use his first-hand knowledge of MG to help others.
Siobhain Carolan
Siobhain Carolan, MGFA ambassador for legislation and advocacy, lives with congenital myasthenic syndrome and is an active advocate for the rare disease community. She has participated in Rare Disease Week on Capitol Hill since 2019 and advocates for legislation in her state of Connecticut. Siobhain works as a patient service representative for the National Organization for Rare Disorders. She serves as co-chair for the MGFA’s MG Walk in Boston and as the lead for the Boston Community Health Fair.
Jenny Clark
Jenny Clark, MGFA ambassador for MG awareness and peer support networks, serves as an MG Friend and support group leader. Originally from Indiana, Jenny now makes her home in Tennessee. Because she has multiple family members with MG, she saw the signs before she was formally diagnosed with seronegative MG in 1990, at age 22. Until 2016, Jenny worked in retail management, and now she enjoys time with her two children and five grandchildren.
Andrea Divis
Andrea Divis, MGFA ambassador for MG awareness and support networks, was diagnosed with MG in 2019. After joining a clinical trial, she became passionate about educating patients through the MG Friends program. From there, her volunteer work blossomed—she started a support group in San Diego, chairs the MG Walk in Southern California, and is leading the first Community Health Fair in San Diego. She lives in Oceanside and enjoys relaxing with her two grown sons and three feline friends.
Kemar E. Green, DO, FANA
Kemar E. Green, DO, FANA, is a rare and complex disease neurologist with subspecialty expertise in neuro-opthalmology and neuro-otology. He is the founder and CEO of NeuroAgent AI, Inc. and HazyEyes, Inc., leading the development of AI-driven, autonomous neurodiagnostic and monitoring platforms. He remains affiliate faculty at the Johns Hopkins Data Science & AI Institute (DSAI), serves as a clinical mentor for Johns Hopkins Biomedical Engineering Undergraduate Design and Precision Care Medicine Design teams, and is a fellow of the American Neurological Association.
Logan Hazellief
Logan Hazellief is the digital and brand strategist at the PAN Foundation, an independent nonprofit dedicated to accelerating access to affordable, equitable healthcare through financial assistance, advocacy, and education. In this role, she oversees the organization’s digital presence, including social media and branding initiatives. Passionate about healthcare, Logan draws inspiration from personal experiences supporting family members with chronic conditions.
James F. Howard, Jr. MD, FAAN
James F. Howard, Jr. MD, FAAN, is a professor of neurology (neuromuscular disorders), medicine, and allied health at UNC Chapel Hill School of Medicine. A practicing neurologist for 46 years, he is the author of more than 250 works on MG. He currently directs the Myasthenia Gravis Clinical Trials and Translational Research Unit at UNC, where he has been the global lead investigator for several of the only approved therapeutics for MG.
Nivedita Jerath, MD, MS
Nivedita Jerath, MD, MS, is a board-certified neurologist and neuromuscular specialist who has trained at Harvard University, Harvard Medical School, Mayo Clinic College of Medicine, and University of Iowa. She is the author of Breaking the Limits: Untold Stories of How Disability Became Power and Billion Dollar Mind. Her work aims to inspire patients, educate caregivers, and challenge societal perceptions about chronic illness and disability.
Greg Josephs
Greg Josephs, MGFA ambassador for legislation and advocacy, has been living with MG for 21 years. A New Jersey native, he earned two degrees from Syracuse University, where he also met his wife. They have three grown children and a very lazy beagle. Greg co-leads the Hampton Roads (Virginia) MG Support Group and engages in advocacy activities on behalf of the MG community.
Mark Larkin, PhD
Mark Larkin, PhD, founded Vitaccess with the aims of harnessing the power of digital technology to better represent the patient voice in drug development and market access, as well as collaborating with fellow experts to provide realistic, experience-based market access and health economics and outcomes research consultancy. Mark has more than 20 years of experience in consulting and holds degrees from University of Cambridge.
Kevin Mack, MA, LPC
Kevin R. Mack, MA, LPC,is the founder and CEO of Mack Counseling, a Houston-based behavioral health organization that provides support to individuals with MG and their caregivers through the MGFA Helpline. Not long after forging this partnership, his own son was diagnosed with MG. MGFA became more than a partner organization—it became a source of guidance, connection, and trusted support for his family during a critical time.
Richard J. Nowak, MD, MS
Richard Nowak, MD, MS,currently serves as chair of the MGFA Medical & Scientific Advisory Council, chief medical advisor to the MGFA, and as a member of the MGFA Board of Directors. He is a neuromuscular-fellowship-trained neurologist and a faculty member in the Department of Neurology at Yale University School of Medicine. Dr. Nowak is the founding director of both the Program for Clinical & Translational Neuromuscular Research and the Yale Myasthenia Gravis Clinic.
Carlos Ortiz
Hailing from Queens, NY, Carlos Ortiz dedicates his work with the MGFA to his father, whose life was profoundly changed by myasthenia gravis. Through advocacy and fundraising, Carlos’ goal is to continue ‘moving the needle’ for the MG community and ensure patients receive the recognition and support they deserve. Carlos is honored to stand by his father’s side, supporting him through every step and challenge of his MG journey. Carlos is an MGFA ambassador, co-chairs the MG Walk New York, and received the 2025 Emerging Leader of the Year Award.
Gülşen Öztosun, MD
Gülşen Öztosun, MD, earned her medical degree from Acıbadem University School of Medicine, where she was awarded a full academic scholarship. She is a physician by training and serves as a clinical research associate at The George Washington University School of Medicine and Health Sciences in the Department of Neurology and Rehabilitation Medicine. Her work involves supporting clinical research in neurological and neuromuscular conditions, particularly myasthenia gravis. More recently, she has been involved in projects exploring how artificial intelligence may help improve the diagnosis, monitoring. and management of MG.
Pat Reynolds
Pat Reynolds is a retired RN and adult psychiatric mental health nurse practitioner. She graduated from the University of Arizona College of Nursing with bachelor’s and master’s degrees in nursing. Pat relies on her holistic nursing framework to guide her role as a caregiver to her husband and other family members. She is an avid lifelong learner and outdoor enthusiast.
Michael Rosario-Prieto, MD
Michael Rosario-Prieto, MD,is a neuromuscular specialist at BayCare Neurology Group, the medical director for the Tampa Bay Muscular Dystrophy Care Center, and the team neurologist for the Tampa Bay Rays. He completed his medical training at New York Medical College and a neurology residency at University of Connecticut in 2012, where his interest in neuromuscular diseases was seeded. After fellowships at Duke University, he moved to Florida, where he has been treating patients and active in clinical trials for over a decade.
Paul Strumph, MD
Paul Strumph, MD, has served on the Board of Directors of the Myasthenia Gravis Foundation of America since 2020, where he is currently the volunteer lead for the Vitaccess Real MG Patient Registry and received the 2022 Impact Award which recognizes a volunteer who has changed the trajectory of the MGFA. Paul is Chief Medical Officer at Seraxis Pharmaceuticals and has more than 20 years of experience in the pharmaceutical development field.
Tuan Vu, MD
Tuan Vu, MD, is a professor of neurology and the director of the Neuromuscular Division and Electromyography Laboratories at the University of South Florida Morsani College of Medicine. In addition to providing expert care to patients with neuromuscular diseases for more than 30 years and teaching neurophysiology and neuromuscular medicine, Dr. Vu is extensively involved in MG clinical trials and has also participated in numerous ALS, CIDP, and myositis/myopathy trials.
Janel Worcester-Brown
Janel Worcester-Brown, ambassador for MG awareness and patient education/support, saw her life change dramatically in 2015 when she first experienced MG symptoms. After years of uncertainty, she was diagnosed in 2019. A seasoned social worker, Janel is an MG Friend, leads the Parenting with MG and Northern New England support groups, assists with special projects and publicly shares her own story, offering hope and inspiration to those on a similar path.
Sarah Wright, DO
Sarah Wright, DO,serves as the neuromuscular program director at Children’s National Hospital in Washington, D.C., where she cares for children and young adults with both hereditary and acquired nerve and muscle disorders. Dr. Wright’s research interests include novel therapeutic targets for Duchenne muscular dystrophy and juvenile myasthenia gravis.