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News

Community News 

The latest info for the MG community is right here! 

 

If you are encountering IVIG shortages at your facility, please report any potential or actual biological product shortages to the Food and Drug Administration, Center for Biologics Evaluation and Research (CBER):

Email: CBERshortage@fda.hhs.gov

Phone: (240) 402 -8380

 

From Lisa Romano, our I Am MG Strong video contest winner! https://www.silive.com/news/2019/06/great-kills-woman-hopes-to-bring-awareness-to-rare-disease.html

 

June Awareness news:

 

Check out a wrap-up of our inagural "Light the Map Teal" campaign for 2019 here

 

Thanks to Paula McGuinness in Illinois: https://thesouthern.com/opinion/letters/voice-of-the-reader-light-the-map-teal/article_8623ad44-64f0-54c4-921f-7cb09cef50a1.html

Thanks to Terri Justick in Pennsylvania: https://www.pressreader.com/usa/the-times-tribune/20190630/283016876252508

Thanks to Paula McGuinness in Wyoming: https://www.wyomingnews.com/opinion/letters_to_editor/mg-sufferers-deserve-our-support-awareness-walk/article_eb637869-c10b-5cf8-a5ed-f4162afa2757.html?utm_medium=social&utm_source=email&utm_campaign=user-share

Thanks to Rachel Pegram in North Carolina: https://spectrumlocalnews.com/nc/charlotte/news/2019/06/26/myasthenia-gravis-disease-awareness-

Thanks to Glenda Thomas in Massachusetts: https://www.metrowestdailynews.com/news/20190623/myasthenia-gravis-framingham-resident-lives-with-rare-disease

Thanks to Simon DeSoto in Texas: http://baycitytribune.com/community/article_9c66db80-92a0-11e9-bbfe-533b351d91d1.html?fbclid=IwAR1Urlc9swRjLvwoXRwKh39utRJPrYAE6-S1NSwe3wiCvsn5LlS6TihwrqU

Thanks to Robert Rumph in Texas: https://sanangelolive.com/news/video/2019-06-18/one-mans-fight-stay-alive

Thanks to Paula McGinnis in Hawaii: https://www.thegardenisland.com/2019/06/08/opinion/letter-for-saturday-june-8-2019/
Thanks to David Yonki in Pennsylvania: https://www.timesleader.com/features/746124/mysthenia-gravis-support-group-meets

Our MG Walk in Meriden, Connecticut: https://www.wtnh.com/on-air/good-morning-ct-at-nine/connecticut-mg-walk-is-coming-to-hubbard-park-in-meriden/2051774591

 

 

E-Blasts

Information on treatments, research and news that affects the MG community can change in an instant. We are your source for the latest, trusted information on MG.  Add your email address to our mailing list to receive information on research, clinical trial opportunities, MG events and more direct to your inbox!

 

Magazines & Newsletters 

  • Focus on MG magazine: Our Focus on MG magazine is published twice a year. The magazine highlights MGFA programs and activities around the country. You can find useful information including MG community updates, practical advice on how to manage MG as a patient, caregiver, or friend and much more.  Read the most recent issue.
     
  • MG News: Our digital newsletter features the latest in MG research, clinical trial updates, advocacy and more. Our digital newsletter incorporates information from the public sector, private sector and from MGFA all in one place. Add your email address to our mailing list and receive information on research, clinical trial opportunities, MG events and more direct to your inbox! 

A World Without MG