Siobhain Carolan, who lives with congenital myasthenic syndrome,
discusses her experiences advocating for those with rare diseases at 2024 Rare Disease Week
on the Hill.
Dr. Heather Finlay-Morreale, a medical doctor who lives with MG,
shares tips for preparing for your doctor’s appointment and making the most of
the time you have with your provider.
In February the MGFA and the MG Community lost a dedicated volunteer
and champion advocate of patients and caregivers. Friends and staff remember his
legacy.