Whether virtual, in person or in a hybrid model, MGFA support groups are a wonderful way to learn more about managing MG and to receive caring support. In addition to groups organized by location or type (in person / virtual), MGFA offers the following virtual specialty support groups:
- Seronegative Myasthenia Gravis
- MAYA (Myasthenia Advocacy for Young Adults)
- Junta en Español (Spanish Language)
- Caregivers
- Pediatric (Children and Teens) – please use this form to register
- Parenting with Myasthenia Gravis
Upcoming MGFA Support Group meetings are listed BELOW or SEARCH by state, region, dates, or type. Have questions? Reach out to us at mgfa@myasthenia.org. You can also reach out to any support group leader; contact emails are provided for each group.
WANT TO VOLUNTEER TO RUN A SUPPORT GROUP?
If you are interested in helping run a support group or starting a new one, fill out the Support Group Leader Volunteer form.
Volunteer with a Support Group
OPINION DISCLAIMER
The views and opinions communicated at, or related to, any MGFA support group meeting, are those of the author(s). MGFA is not responsible for the author’s views and opinions and, unless expressly indicated, nothing shared at, or related to, the MGFA support group meetings are meant to reflect the official views, opinions, policies, or positions of MGFA. Further, nothing communicated at, or related to, any MGFA support group meeting is intended to harm any protected group, organization, entity, or individual.
Denver Support Group (run by Myasthenia Gravis Association of Colorado)
We meet monthly on the second Saturday of each month. We meet in the cafeteria of Presbyterian St. Luke’s Hospital from 1-3pm. The address is 1719 E 19th Ave, Denver, CO 80218.
The link to our website is: https://www.4-mga.org/
For questions or to RSVP, contact Dave Gestner at 4mgacolorado@gmail.com
Seronegative Support Group
The Seronegative Support Group meets quarterly on Saturdays at 2pm ET via Zoom.
For more infornation, email snmggroup@gmail.com
Link to Zoom:
Aug 10, Nov 9, 2024 02:00 PM Eastern Time (US and Canada)
Join Zoom Meeting https://us06web.zoom.us/j/86836264021
Dial by your location
• +1 305 224 1968 US
Meeting ID: 829 3410 3702
Hamptons Road Support Group
**NEW – Support Group**
Virtual meetings will be held the second Monday of each month, at noon
For more info and the zoom link, please contact Greg Josephs greg.josephs2@gmail.com or David Aguilar ramblon007@cox.net
There will be separate meetings will be held in person on the first Saturday of each month, at noon at
Careplex Hospital in Hampton, Virginia (3000 Coliseum Drive) Please see separate listing.
Parenting with MG
Parenting is challenging for the healthiest of parents. Myasthenia gravis (MG) adds another layer to navigate within the parenting realm, but it doesn’t need to be in isolation. Having MG can feel lonely and may tinge our view of ourselves especially as parents. This group is open to parents of children of all ages; even when they are adults, a parent’s work is never done. We are a community of parents supporting parents and those considering parenthood. We learn from one another, share helpful hacks, hear from experts in the field and get the opportunity to be part of a positive, problem-solving community where YOU matter.
This group meets on the 2nd Monday of the month at 12pm EST
Tri-State NY,NJ, CT Support Group
Second Tuesday of every month from 6:00pm-8:00pm ET
For more information Contact is 3statemg@gmail.com to reach Phil Cogan or Sue Klinger
We also maintain a private Facebook group page. To join, complete membership questions using link at https://www.facebook.com/groups/mgfanyc
Northeast Wisconsin Myasthenia Gravis Support Group
Northeast Wisconsin Myasthenia Gravis Support Group meets on the second Thursday of each month (Sept-June) at 6:00pm.
The support group meets at Alleluia Lutheran Church 6725 Elmro Rd, Greenleaf, WI 54126
Contact: Niki Grossheim at new4mg@gmail.com 920-841-9988 https://mgwisconsin.org
Portland,Seattle, and Greater PNW MG Patients and Caregivers Group
The PNW Group meets either the 2nd Thursday of the month or the 3rd Thursday via Zoom.
Please contact us to be added to our email list so you receive log in information and info on guest speakers. We would love to get to know you!
Email pnwmgsg@gmail.com or cara.brown1@gmail.com for more information and to get the meeting invite.
Southern Illinois MG Support Group
Although our name is Southern Illinois, we have attendees from IN, KY, MI and Canada,
we are more of a social group sharing information reviewing Webinars etc. This group meets on the 2nd Thursday of the month at 7PM Central Time.
To get the Zoom link, please email ka9mzj@gmail.com
Bethesda,Md Support Group
The Bethesda, MD, Support Group meets the third Saturday of the month from 10:00AM to 12:00PM Eastern Time via Zoom. Meetings are: Sept. 21; Oct. 19; Nov. 16; Dec. 21, 2024; Jan. 18, 2025; Feb. 15, Mar. 15 at 10:00AM.
For Information contact: Alan Sinclair, Bethesda Support Group Leader: 301-474-7745 or alsin6206@verizon.net
Both the Bethesda, MD, MG Support Group and our sister group, the Glen Burnie, MD, Support Group are meetings of persons with MG, MG caregivers, and any person who wants to know more about MG to discuss treatments, medications, how we’re coping with MG, etc., via ZOOM. Eventually the Bethesda Group hopes to be able to return to in-person meetings at Suburban Hospital in Bethesda as well as continuing ZOOM meetings. Our meetings on ZOOM and when in-person are very informal. I usually send the meeting ZOOM link information the weekend before the meeting. We try to carry a positive emphasis about our common disability. Anyone is welcome at both meetings.
Virginia Blue Ridge-Roanoke
Meets on Zoom.
Our meetings are on the 3rd Tuesdays of the month,
Odd months afternoons, Even months in the evenings.
Mar 19, 2024 01:00 PM
Apr 16, 2024 07:00 PM
May 21, 2024 01:00 PM
Jun 18, 2024 07:00 PM
Jul 16, 2024 01:00 PM
Aug 20, 2024 07:00 PM
Sep 17, 2024 01:00 PM
Oct 15, 2024 07:00 PM
Nov 19, 2024 01:00 PM
Dec 17, 2024 07:00 PM
If you have a smart phone, tablet, or computer with camera & microphone you can join us.
You can also connect on any phone by dialing in. Call Tom Powers & he can coach you through it.
Join Zoom Meeting
https://us02web.zoom.us/j/83648352567?pwd=NmswL3RKSUhwQWUzSStmZ3pFUzNhQT09
Meeting ID: 836 4835 2567
Passcode: roamg
Dial by your location
Instructions for Dial-Up You need unlimited long distance service.
- 1. Dial 1 301 715 8592 US2. Enter Meeting ID: 836 4835 2567 Press #
- 4. Enter Passcode: 707243 Press #
- 5. Wait for Meeting Host to admit you.
Added notes for Dial-Up * 6 turns on and off mute, * 9 “Raises your Hand” – to get our attention.<