Whether virtual, in person or in a hybrid model, MGFA support groups are a wonderful way to learn more about managing MG and to receive caring support. In addition to groups organized by location or type (in person / virtual), MGFA offers the following virtual specialty support groups:
- Seronegative Myasthenia Gravis
- MAYA (Myasthenia Advocacy for Young Adults)
- Junta en Español (Spanish Language)
- Caregivers
- Pediatric (Children and Teens) – please use this form to register
- Parenting with Myasthenia Gravis
Upcoming MGFA Support Group meetings are listed BELOW or SEARCH by state, region, dates, or type. Have questions? Reach out to us at mgfa@myasthenia.org. You can also reach out to any support group leader; contact emails are provided for each group.
WANT TO VOLUNTEER TO RUN A SUPPORT GROUP?
If you are interested in helping run a support group or starting a new one, fill out the Support Group Leader Volunteer form.
Volunteer with a Support Group
OPINION DISCLAIMER
The views and opinions communicated at, or related to, any MGFA support group meeting, are those of the author(s). MGFA is not responsible for the author’s views and opinions and, unless expressly indicated, nothing shared at, or related to, the MGFA support group meetings are meant to reflect the official views, opinions, policies, or positions of MGFA. Further, nothing communicated at, or related to, any MGFA support group meeting is intended to harm any protected group, organization, entity, or individual.
Parenting with MG
Parenting is challenging for the healthiest of parents. Myasthenia gravis (MG) adds another layer to navigate within the parenting realm, but it doesn’t need to be in isolation. Having MG can feel lonely and may tinge our view of ourselves especially as parents. This group is open to parents of children of all ages; even when they are adults, a parent’s work is never done. We are a community of parents supporting parents and those considering parenthood. We learn from one another, share helpful hacks, hear from experts in the field and get the opportunity to be part of a positive, problem-solving community where YOU matter.
This group meets on the 2nd Monday of the month at 12pm EST
Tri-State NY,NJ, CT Support Group
Second Tuesday of every month from 6:00pm-8:00pm ET
For more information Contact is 3statemg@gmail.com to reach Phil Cogan or Sue Klinger
We also maintain a private Facebook group page. To join, complete membership questions using link at https://www.facebook.com/groups/mgfanyc
Northeast Wisconsin Myasthenia Gravis Support Group
Northeast Wisconsin Myasthenia Gravis Support Group meets on the second Thursday of each month (Sept-June) at 6:00pm.
The support group meets at Alleluia Lutheran Church 6725 Elmro Rd, Greenleaf, WI 54126
Contact: Niki Grossheim at new4mg@gmail.com 920-841-9988 https://mgwisconsin.org
Myasthenia Gravis in Tennessee
This group meets the 2nd Thursday of each month at 6:30 PM via Zoom.
To register for the meeting, click the link below:
Registration Link for 02/13/25 meeting:
Portland,Seattle, and Greater PNW MG Patients and Caregivers Group
The PNW Group meets either the 2nd Thursday of the month or the 3rd Thursday via Zoom.
Please contact us to be added to our email list so you receive log in information and info on guest speakers. We would love to get to know you!
Email pnwmgsg@gmail.com or cara.brown1@gmail.com for more information and to get the meeting invite.
Southern Illinois MG Support Group
Although our name is Southern Illinois, we have attendees from IN, KY, MI and Canada,
we are more of a social group sharing information reviewing Webinars etc. This group meets on the 2nd Thursday of the month at 7PM Central Time.
To get the Zoom link, please email ka9mzj@gmail.com
Bethesda,Md Support Group
The Bethesda, MD, Support Group meets the third Saturday of the month from 10:00AM to 12:00PM Eastern Time via Zoom.
For Information contact: Alan Sinclair, Bethesda Support Group Leader: 301-474-7745 or alsin6206@verizon.net
Both the Bethesda, MD, MG Support Group and our sister group, the Glen Burnie, MD, Support Group are meetings of persons with MG, MG caregivers, and any person who wants to know more about MG to discuss treatments, medications, how we’re coping with MG, etc., via ZOOM. Eventually the Bethesda Group hopes to be able to return to in-person meetings at Suburban Hospital in Bethesda as well as continuing ZOOM meetings. Our meetings on ZOOM and when in-person are very informal. I usually send the meeting ZOOM link information the weekend before the meeting. We try to carry a positive emphasis about our common disability. Anyone is welcome at both meetings.
Virginia Blue Ridge-Roanoke
Virginia Blue Ridge – Roanoke Myasthenia Gravis Support Group
Odd Month Meeting in the Afternoon
Time: Mar 18, 2025 01:00 PM Eastern Time (US and Canada)
Join Zoom Meeting
https://us02web.zoom.us/j/83258378572?pwd=NWhIaG5tOHBaUnduNFlZTXc4QXZiUT09
Meeting ID: 832 5837 8572
Passcode: roamg
Dial by your location
Instructions for Dial-Up You need unlimited long distance service.
- Dial one of these numbers all are long distance
1 301 715 8592 US (Germantown, MD)
1 312 626 6799 US (Chicago, IL)
1 929 205 6099 US (New York, NY)
1 346 248 7799 US (Houston, TX)
1 669 900 6833 US (San Jose, CA)
1 253 215 8782 US (Tacoma, WA) - Enter Meeting ID: 832 5837 8572 Press #
- Press #
- Enter Passcode: 762019 Press #
- Wait for Meeting Host to admit you.
Added notes for Dial-Up * 6 turns on and off mute, * 9 “Raises your Hand” – to get our attention.
We are continuing our Support Group on Zoom.
If you have a smart phone, tablet, or computer with camera & microphone you can join us.
You can also connect on any phone by dialing in. Call Tom Powers & he can coach you through it.
1-540-420-0847
Please invite MG concerned persons to join us.
The Virginia Blue Ridge – Roanoke Myasthenia Gravis Support Group is jointly sponsored, by the MGFA & the MDA. Muscular Dystrophy Association includes MG as one of its 42 neuromuscular diseases for which it provides services. Myasthenia Gravis Foundation of America is the only nation-wide organization singularly focused on Myasthenia Gravis.
Tom Powers is the Group Facilitator. Phone: 540-420-0847, Email: tompowers56@gmail.com
Southeastern Wyoming
The first MGFA support group in Wyoming is here. This group will meet in person on the 4th Tuesday of each month in the Cafeteria of the Cheyenne Regional Medical Center
Register: Email
Locations vary within the Cheyenne area
Phoenix Support Group
Meets via Zoom the last Tuesday of the month at 5:00PM AZ time
Join Zoom Meeting
https://us06web.zoom.us/j/84898334847?pwd=4i606qRHuNIWAQbfghtoIJM0LAMKwV.1
Dial by your location
• +1 669 444 9171 US
Meeting ID: 848 9833 4847
Passcode: 708893
For more information, please contact Kim at 303-253-5255