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Support Groups & MG Friends

Support Groups

Are you looking to connect with others who share common life experiences? Support Groups can offer you support, resources, educational programming as well as social and recreational activities.

 

  • Share your story. Support Groups are an opportunity to share your experiences openly and freely in a safe setting. Sharing your journey will not only offer you a sense of empowerment, but will help others in finding reassurance and learning new strategies to living with MG.
  • Learn from local professionals. Support Groups offer educational programming and invite guest speakers directly from your community to present on a variety of topics. There are opportunities to learn about exercising techniques, insurance information, wellness, diet and more.
  • Offer support to your family & friends. Support Groups are led by the community and naturally become family-oriented. We typically turn to our family and friends first, but they may need support too! Support Group meetings are an opportunity for your family, caregiver and / or friends to learn more about MG.
  • If you are interested in starting a support group, please reach out to Dova Levin at dlevin@myasthenia.org.

As we continue to monitor the current health crisis of Coronavirus, and learn the severity of this global health pandemic, MGFA has requested that all Support Group Leaders hold off on hosting in-person meetings until further notice. However, please check our virtual Support Group schedules below to find a meeting.

 

We want to reiterate that our top priority is the safety and wellbeing of all members of the extended MGFA family. Should you have any questions, please do not hesitate to contact the MGFA at 1-800-541-5454 or email mgfa@myasthenia.org.

Click Here for the Virtual Meetings Schedule  Click Here for the Virtual Meetings Calendar

 

 

 

 

Support Group Alert - Our First "Spanish Language" Support Group

Our Southern California MGFA Support Group is holding TWO online, Zoom support groups on Saturday, October 4, 2020. The first one is from 11:00 a.m. - 1:00 p.m. Pacific time. You can see the details HERE.

The second one is an ALL SPANISH LANGUAGE support group from 3:00 p.m. - 5:00 p.m. Pacific time. For our many native spanish speakers around the country, we hope you'll consider attending as this is our very first MGFA support group of its kind. See the agenda and brochure HERE.

 

MG Friends

Are you or someone you know looking for phone support? 
Connect with an MG Friend

 

MG Friends are here to support you! Our free peer-to-peer phone support program, MG Friends, helps to ensure that everyone in the community gets the information they need, and know they are not alone in living with myasthenia gravis. While Support Groups are critical to service delivery, there are many people who are not able to access this service or who feel more comfortable talking one-on-one than sharing in a group setting. MG Friends provides the opportunity for a person with questions and concerns to connect to someone else with MG—no matter where they live in the United States.  
 

 

Myasthenia Advocacy for Young Adults (MAYA)

The MGFA’s Myasthenia Advocacy for Young Adults (MAYA) is guided by the desire to help young adults on how to live a successful and positive MG lifestyle. In an effort to create a community for young MG patients to share their experiences and knowledge, MAYA develops discussion topics and engagement opportunities that are relative to the young adult demographic. MAYA offers virtual meet-ups and networking experiences, where all individuals feel welcomed and supported.


Want to get involved in MAYA?

Walk for a World Without MG

The MG Walk is dedicated to raising awareness, renewing hope, and connecting communities around MG. The Walk raises critical funds for research, patient services, education and advocacy.  The Walk puts the power directly into the hands of the community; allowing everyone battling this illness to become part of the driving force for MG research, to ultimately find a cure. The Walk also provides a space to share and support each other in a safe and nurturing environment, often for the first time, while joining with community. Be a part of the movement!

 

MG Organizations

Although MGFA is a national organization, we understand that there are benefits in having the support of regional organizations; believing in the notion that “together we’re stronger”.  MGFA is proud to promote these sister organizations that help promote awareness and support persons diagnosed with mg on a more local level. You can find more information on these regional organizations by clicking on the links below:

 

Partners & Affiliates

The MGFA works closely with a variety of groups that help us deliver on our mission and leverage our resources. 

A World Without MG