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Latest Post

Finding Strength in the Journey: Valerie’s Myasthenia Gravis Story

Valerie Schaffer | June 5, 2025
At first, Valerie drew inward when she was diagnosed with MG. Now, seven years later, she is ready to speak about her story to raise awareness and help others living with the disease find hope.
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LATEST FROM THE MGFA INSIDER BLOG

Spotlight on the MG Community: Paul Strumph
MGFA News

Spotlight on the MG Community: Paul Strumph

Kate Stober | April 22, 2024
Learn more about a key member of our volunteer Board of Directors.
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Why the MG Walk Matters to Me
Community Fundraising

Why the MG Walk Matters to Me

Kate Stober | April 18, 2024
It's more important than ever to restart the MG Walk. We’re closer than ever to a world without MG. But to get there, we need you. 
Read More
Running the Denver Colfax Marathon for a World Without Myasthenia Gravis
MG Articles

Running the Denver Colfax Marathon for a World Without Myasthenia Gravis

Kate Stober | April 10, 2024
“We want to find a way to give back to an organization that’s been tremendously helpful to us.” 
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I Was Fine a Minute Ago: My First Year with Myasthenia Gravis
MG Articles

I Was Fine a Minute Ago: My First Year with Myasthenia Gravis

Kate Stober | April 3, 2024
Read an excerpt from this new ebook, full of humorous and honest tales about life with myasthenia gravis.
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Webinar Recap: Is It Safe to Exercise with Myasthenia Gravis?
MG Articles

Webinar Recap: Is It Safe to Exercise with Myasthenia Gravis?

Kate Stober | March 28, 2024
Sarah Wright, DO MS, joined us on March 20 to discuss a hot topic in the MG Community
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The “Rocky of Rap Media” Takes on MG
Living with MG Stories

The “Rocky of Rap Media” Takes on MG

Scott Bejda | March 21, 2024
Here I was in my early twenties, my work was getting known all over the world, but I was secretly battling a potentially life-threatening disease
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2024 Rare Disease Week on Capitol Hill
Our MG Voice Advocacy

2024 Rare Disease Week on Capitol Hill

Siobhain Carolan | March 15, 2024
Siobhain Carolan, who lives with congenital myasthenic syndrome, discusses her experiences advocating for those with rare diseases at 2024 Rare Disease Week on the Hill.
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My CMS Journey: How the Right Diagnosis Changed My Life and Led Me to Advocacy
Living with MG Stories

My CMS Journey: How the Right Diagnosis Changed My Life and Led Me to Advocacy

Siobhain Carolan | March 13, 2024
Siobhain shares how living with congenital myasthenic syndrome helped her become a fierce advocate for those with rare diseases.
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Making the Most of Your Doctor Appointments
MG Articles

Making the Most of Your Doctor Appointments

Kate Stober | March 7, 2024
Dr. Heather Finlay-Morreale, a medical doctor who lives with MG, shares tips for preparing for your doctor’s appointment and making the most of the time you have with your provider.
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Exercising When You Have Myasthenia Gravis
MG Articles

Exercising When You Have Myasthenia Gravis

Nick Mo | February 15, 2024
Is it safe to exercise with myasthenia gravis?
Read More

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