MISIONA Ia faafailele ni sootaga moni mo talavou matutua
ola faʻatasi ma le myasthenia gravis.
VAAIGA O se feso'ota'iga a talavou matutua e lagolagoina ta'itasi
isi i a latou malaga MG.
Susū mai i le MAYA!
O le MGFA's Myasthenia Advocacy for Young Adults (MAYA) o se polokalame ua mamanuina e fesoasoani ai i tagata e 18–40 tausaga le matutua ia ola i se olaga manuia ma lelei o le MG. E ala i autu o talanoaga ma avanoa e auai ai ua mamanuina mo talavou matutua, ua fausia ai e le MAYA se alalafaga e mafai ai e gasegase talavou o le MG ona faasoa atu o latou aafiaga ma le malamalama.
E talimalo le MAYA i fonotaga fa'ainitaneti ma mafutaga fa'afeso'ota'i, lea e lagona ai e tagata uma le taliaina ma le lagolagoina.
Fonotaga Fusuaga
E feiloa'i masina le MAYA e ala i le Zoom – taga'i i le fa'asologa i luga o la matou Itūlau a le Vaega Lagolago. Imeli mgfamaya@gmail.com e lesitala ai. E mafai foi ona e mauaina ni sootaga i mea tutupu i le Facebook vaega.
Punaoa MG
Faʻamolemole siaki le itulau o Punaoa o le upega tafaʻilagi a le MGFA. O iinei e te maua ai le afifi faʻapitoa mo gasegase MG. O loʻo iai foʻi isi punaoa a le MGFA iinei e pei o le polokalame a le MG Frirends.
Social Ala o Faasalalauga
Auai i le nu'u i luga ole laiga a le MAYA e ala i le lafoina o se talosaga e auai i la matou Vaega FacebookFeso'ota'i ma isi sui o le MAYA ma ia fa'afouina i mea fou o le vaega.
Taitaiga o Volenitia a le MAYA
“Ua tuuina mai e MAYA ia te a’u le avanoa e fesootai ai ma tagata MG i lo’u matua lea semanu ou te le mafai ona fesootai i ai pe ana leai. E matua faamalolo lava le talanoa ma tagata e malamalama atoatoa ma malamalama i mea uma na ou oo i ai i la’u malaga MG. E tele le faamoemoe ma le faamautinoaga ua ou maua mai le vaega e le na o a’u o loo tauivi ma MG!”
Jessica M. – Taitai o le Vaega Lagolago
Jessica M. was diagnosed with MG in 2006 when she was 13 years old. Growing up in the Bay Area, she met another MG patient for the first time in 2016 through the Stanford Support Group. She got involved with the MGFA that same year through her local MG Walk. At the end of 2019, she started a support group in San Francisco and currently leads the MGFA MAYA Support Group. She is also a lead volunteer helping organize MGFA Community Health Fairs. In her free time, Jessica likes to cook, bake (she works as a professional baker), play golf, and explore her home base of San Francisco.
O Vaega Lagolago lautele uma a le MGFA e iai le tapula'a o tausaga e le itiiti ifo i le 18 tausaga. Afai o oe po'o se tasi e te iloa e i lalo ifo o le 18 tausaga ma e mana'omia se lagolago fa'aopoopo, fa'amolemole saili se fautuaga mai se tausi ma'i, se tagata va'ava'ai, po'o se isi tagata matua fa'atuatuaina pe a mafaufau i punaoa. Mo nisi fa'amatalaga e uiga i le lagolago mo tamaiti ma talavou, fa'amolemole fa'afeso'ota'i ktimothy@myasthenia.org.