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MG Awareness Month – Turning Awareness into Action

June is MG Awareness Month around the world. It is an important time to Take Action and create awareness and understanding of the challenges and opportunities faced by everyone in the MG Community. This year, we are “changing” the theme to MG Action Month – Turning Awareness into Action - and we are offering specific calls to action for the MG Community and beyond to find creative ways to show that WE ARE MUCH MORE THAN OUR MG.

 

Check out our latest MGFA Awareness Toolkit Online HERE for fun and creative ideas to drive awareness no matter where you live in the world. Check out all the ways you can get involved and take action for the MG Community.

 

Take Action on These Ideas

 

PROCLAMATIONS: Meet with or call legislative leaders to secure a PROCLAMATION officially declaring June as MG Awareness Month. Use our handy PROCLAMATION SAMPLE DOCUMENT to help you write a request. Please work on this soon to have it in time for June.

 

OUR MG VOICE: Make your voice heard in Washington DC by advocating for the Speeding Therapy Access Today (STAT) Act of 2021 (Bill H.R. 1730/S,760) (STAT Act). The STAT Act is a bipartisan bill aimed at improving the development and access to therapies for rare disease patients like those with myasthenia. The Every Life foundation has a clickable link to help you take action and contact your political leaders: Take Action | EveryLife Foundation for Rare Diseases.

 

LIGHT UP THE WORLD IN TEAL: As many know, the color teal is the official color of the MG Community. You can help us light the world in teal by contacting the real estate management companies of buildings and structures in your region (See page 23 of the Awareness Toolkit – and training to come) or take a digital photo of yourself in an engagement activity, and light up our Global Online MGFA Map. The map will be live on June 1, 2021.

 

MEDIA COVERAGE OF MYASTHENIA: Reach out to local broadcast and print media in your region, and “pitch” reporters to cover the challenges that MG patients face. Tell them your story, pitch them on key legislation, talk about your life with MG, and make sure they know that June is awareness month. Even write a article that you can post in their publication. More training coming but you can use these Media Document Guidelines to help you.

 

PAINT N’ SIP: MGFA has lined up several artists from the MG Community to run a fun, online, Paint n’ Sip event so you can learn some best practices and techniques for watercolor painting. Event data to be determined. Check back soon.

 

MGFA COOKBOOK CHALLENGE: Pull out our favorite recipe and send them to MGFA@myasthenia.org with the subject line MGFA Cookbook Challenge. We will select the best recipes and combine as part of an MGFA MG Cookbook that we are producing for the holiday season. Send in your submissions starting on June 1, 2021.

 

MGFA T-SHIRT DESIGN CHALLENGE: Build a creative T-shirt design and submit to MGFA@myasthenia.org and we will select winning designs and create actual T-shirts. Tie in the message of Turning MG Awareness into Action. Send in your submissions starting on June 1, 2021.

 

WELLNESS ONLINE SEMINARS: Volunteers will run fun, online seminars to improve your wellness and strengthen your body and mind. We will publish the schedule dates soon for the community.

 

SOCIAL MEDIA: Create videos, take photos of yourself or family with signs and MG shirts, wear teal, share MGFA social content, and spread the word about the challenges the MG Community faces through social media and email. Send notes and content to your friends and family, and publish fun, creative stuff so everyone knows what myasthenia is all about. And use the hashtags #MGStrong.

 

More resources and information will be available soon.

A World Without MG