Lily Sander will never forget what it was like to meet other people with neuromuscular diseases the first time she attended Muscular Dystrophy Association (MDA) Summer Camp. Living with Charcot-Marie-Tooth disease, Sander had met only one or two other people with neuromuscular diseases in her city. She was used to explaining why she used a The post MDA Engage: National ambassador brings message of belonging, resilience appeared first on Myasthenia Gravis News.

Approved and experimental targeted treatments for generalized myasthenia gravis (gMG) show different patterns of benefit across measures of treatment response, according to an indirect comparison analysis of clinical trial data. Using mathematical models to account for differences in dosing schedules, researchers found that individual therapies differed in their maximum benefit, speed of response, and cumulative The post gMG treatments show varied benefits across response measures appeared first on Myasthenia Gravis News.

On Oct. 4, I turned 66. The 4th is also the feast day of St. Francis of Assisi. For most of my life, I also shared it with my Aunt Kay. As a boy in Malden, Massachusetts, I thought that was a fine piece of luck. A saint who preached to birds and tamed a The post Like a donkey, my MG body is stubborn, but it has also carried me appeared first on Myasthenia Gravis News.

A new study comparing outcomes of two different strategies for treating generalized myasthenia gravis (gMG) found that both the approved med Vyvgart (efgartigimod alfa) and a blood-cleaning procedure called double-filtration plasmapheresis (DFPP) were generally equally effective in easing symptoms. Both treatments significantly reduced disease-causing antibodies and improved daily function in people living with gMG, the data The post 2 strategies for treating gMG each work with 1 treatment, study finds appeared first on Myasthenia Gravis News.

Breathing is supposed to be automatic. Invisible. Effortless. Most people never think about the mechanics behind it — the diaphragm pulling down, the rib cage expanding, the air moving in and out like a tide. But for some of us living with myasthenia gravis (MG), those mechanics take center stage. They become the diva demanding The post When healthcare language fails myasthenia gravis patients in crisis appeared first on Myasthenia Gravis News.